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Aug 06, 2025

1 Year Twin Stomaversary Celebration

This topic is about celebrating the first anniversary, or "stomaversary," of living with two stomas—one for fecal and one for urinary diversion. The person sharing their experience feels a mix of surprise at how quickly the year has passed and a sense of how using the stomas has become a normal part of life. The overall feeling is positive and celebratory. Here are some helpful insights and advice shared by others in the community:

- Community support is crucial. Many people emphasize how important it is to have encouragement, share experiences, and maintain a positive outlook when adjusting to life with an ostomy.

- Time and adaptation play a big role. Long-term ostomates often mention that memories of "normal" bowel function fade over time, and living with a stoma becomes a routine part of life fairly quickly.

- Proper stoma siting is essential. One person shared their experience of needing a second surgery because the initial stoma was not placed well. Correct placement is vital for long-term comfort and usability.

- Be realistic about reversals. Someone who had a reversal cautions that it doesn't always mean a return to normal. Issues like clustering bowel movements can continue, and some people even choose to return to an ileostomy. It's important to have realistic expectations.

- Nutrition can be challenging. When solid food is difficult to manage, dietitian-prescribed oral nutrition supplements and keeping up with high fluid intake can help prevent nutritional decline.

- Celebrate milestones. Recognizing "stomaversaries" and other achievements can help maintain motivation and acknowledge personal resilience.
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