This topic is about a person who is three months into living with a new J-pouch, a surgical option for people who have had their colon removed. The J-pouch is meant to help with waste elimination, but this person is experiencing significant discomfort and challenges compared to when they had an ileostomy, which is a type of stoma. They are trying to figure out what is considered normal during recovery and whether they should consider going back to a stoma. Here are some insights and advice shared by others:

1. The biggest regret for some is choosing the J-pouch, especially if the option to keep the stoma was not fully discussed. This has led to a loss of trust in their surgeon.

2. There is uncertainty about how long to wait before deciding if the J-pouch will improve or if it’s time to consider a reversal.

3. People are seeking first-hand experiences from those who returned to an ileostomy. Many report that symptoms and weight stabilized after the reversal.

4. It’s important to find a doctor who provides balanced information rather than overly optimistic promises.

5. Success stories with a J-pouch are sought, particularly from those who have managed without chronic antibiotics, strict diets, or ongoing weight loss.

6. Several members have shared positive experiences after abandoning the J-pouch and returning to an ileostomy, noting significant improvements in their quality of life.

7. If the stoma was well-tolerated before, some suggest reverting to it to avoid further health issues, as weight often stabilizes after the reversal.

8. There is a shared opinion that J-pouches can sometimes fail or cause internal problems, and it’s advised to seek a second opinion from a surgeon who is open to all options.

9. One person mentioned knowing only one satisfied J-pouch patient, highlighting that patient experiences can vary greatly.

10. An alternative option mentioned is the continent K-pouch, which has been life-changing for some and is worth considering.