My husband got his J-pouch around 3 months ago. It's been hard for him because he felt alright with the stoma before the pouch, but now he feels worse. Losing weight, limited food choices, his tummy never feels good. He's been doing all the diets necessary for the pouch.
I know that what is normal is so subjective here. I really don't know what to expect. Will it improve or not? He really wants to go back to the stoma, but he's afraid he will lose more. Anybody have thoughts?
G-Day Viviana,
I put up with a J-Pouch for way too long with a lot of problems. I demanded going back to my ileostomy, and now my life is perfect with no problems.
Good luck on making the right decision.
Regards, IGGIE
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Afraid to lose more weight? If he had the stoma and did well with it, he should go back to it. Some have gone back. And those that did improved 💯 %.
Better to know the devil, it's been said (waves to Iggie 👋)
Why did he choose the j-pouch? It's well documented to fail and have serious internal consequences, in my opinion, from listening to members who've had it.
Just wait. They will chime in.
I only lasted 12 months with the stupid thing. I know exactly how he feels.
That is his biggest regret. Well, why he chose the J-pouch is because he was hoping it would be better for sure, and the doctor didn't suggest the other way around. That also, unfortunately, made him lose trust in the doctor.
Thanks for your thought 😊
We thought to give it some time, but it looks like it doesn't provide any hindsight. His worry is whether his condition will really improve if he goes back to the stoma. He is thinking about losing more intestines.
How are you doing after going back?
Thanks for the insight. We really hope to make the right decision and find a doctor who is really helpful instead of selling dreams or not revealing enough.