i had my 2nd of 3 surgeries. 1- remove colon, create ileostomy with end stoma, 2-create jpouch with loop stoma, 3rd surgery will be may 6th to take down ileostomy and close me up. Did great after surgery one. Surgery 2 which was Jan 30th, I’ve gotten dehydrated have no energy and have the absolute worst heartburn ever. Had the barium X-ray test to check blockage non found.
We started doing iv’s 2 times week so I can concentrate on trying to get food in me. I also have gastro paresis and gastroenteritis, Sjögren syndrome, raynauds, PSC, bladder disease but no symptoms of my ulcerative colitis which started this whole mess.
Thoughts, help, info?
kim

