Heartburn and Recovery Challenges After J-Pouch Surgery

Replies
1
Views
1998
rkjr83
Mar 11, 2019 10:06 pm

i had my 2nd of 3 surgeries. 1- remove colon, create  ileostomy with end stoma,  2-create jpouch with loop stoma, 3rd surgery will be may 6th to take down ileostomy and close me up.  Did great after surgery one. Surgery 2 which was Jan 30th, I’ve gotten dehydrated have no energy and have the absolute worst heartburn ever.  Had the barium X-ray test to check blockage non found.  

We started doing iv’s 2 times week so I can concentrate on trying to get food in me.  I also have gastro paresis and gastroenteritis, Sjögren syndrome, raynauds, PSC, bladder disease but no symptoms of my ulcerative colitis which started this whole mess.  

Thoughts, help, info?

 

kim

Puppyluv56
Mar 12, 2019 12:47 pm

Kim, 

WOW is all I can say! You have certainly been through hell! I have just a Colostomy from cancer, so none of those other things that ruin your days. Good luck with surgery number three! That one seems to be the charm! Keep us posted on your progress! Thoughts and prayers! 

Puppyluv

Posted by: iMacG5

Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike