This topic is about someone who has been living with a permanent colostomy and a "Barbie-butt" closure since 2021 due to stage-3 colon cancer. They are experiencing severe nerve pain four years after their surgery and are looking for ways to manage this pain, as their doctors have not been able to provide much help. Here are some suggestions and insights that might be helpful:
1. Consider medication options that others have found useful for managing post-surgical or neuropathic pain:
- Gabapentin, which is the generic form of Neurontin, has been reported to provide relief. However, it's important to taper off gradually to avoid seizures.
- Tramadol has been used by some, though it may offer minimal relief and can cause mental fog the next day.
- Prescription Lidocaine patches can be applied to painful areas as a topical alternative.
2. Seek a referral to a pain-management or neurology specialist. They can:
- Determine if a targeted nerve block injection might be suitable.
- Help distinguish between referred pain (pain felt in one area but originating from another) and local nerve injury, scar-tissue entrapment, or abscesses.
3. Keep all your doctors informed, including your surgeon, gastroenterologist, primary-care physician, and any relevant specialists. Complex cases often need coordinated care and multiple opinions.
4. If the pain is concentrated at the original surgical site or suddenly worsens, insist on imaging and examination to rule out new complications like abscesses, adhesions, or spinal issues.
5. Discuss with your healthcare providers whether what you're experiencing is true pain or chronic discomfort, as acute pain requires immediate attention.
6. Be open to trying different medications and topical treatments under medical supervision until you find something that provides adequate relief.
See full discusison