This topic is about someone who has been living with Crohn’s disease and is now facing the possibility of having a permanent ostomy. Initially, they had a temporary colostomy to help heal their bowel, but due to ongoing issues and a recent flare-up, doctors are recommending a permanent ileostomy instead of a reversal. This news has been quite overwhelming, and they are seeking advice and support from others who have been through similar experiences.

Here are some helpful insights and advice shared by others:

1. Stoma care and product help:
- Keep reaching out for professional support. Schedule time with a stoma nurse and contact customer-care lines of manufacturers for sample supplies, fitting tips, and skin-care advice.
- There are many accessory combinations available, such as different convex wafers, rings, pastes, powders, and seals, which can help stop leaks and allow the skin to heal.

2. Acceptance and mental outlook:
- Many people initially felt despair but have learned to live well with their stoma. Acceptance, humor, and celebrating "stoma birthdays" have helped them move forward.
- Focus on the positives, like living pain-free, freedom from constant toilet trips, and simply being alive. Consider counseling if feelings of depression persist.

3. Reversal realities:
- Some people have had reversals that did not work out, leading to issues like urgency, frequency, or pain, and later opted for a permanent ostomy.
- Each additional abdominal surgery can increase the risk of scar tissue and long-term pain.

4. Alternative surgical options to discuss with your surgeon:
- Ileostomy (standard Brooke ileostomy).
- BCIR/continent ileostomy (internal reservoir emptied by catheter).
- Ileal pouch–anal anastomosis (J-pouch). Experiences vary; some have good function, while others face issues like pouch failure or pouchitis.

5. Crohn’s control before any major surgery:
- Active disease can reduce the success of a reversal. Focus on medical therapy first, such as biologics or strict diet supervision.
- Avoid long-term use of systemic steroids if possible due to potential bone damage.

6. Medication, pain, and lifestyle tips:
- Manage postoperative or adhesion pain carefully, as prolonged use of high-dose pain medications can lead to dependence.
- Stress can trigger Crohn’s flares, so try creative outlets or relaxation techniques to manage stress.

7. Patient advocacy:
- If you still want a reversal, push for a clear plan: optimize inflammation medically, request a repeat colonoscopy to check for healing, and ensure you are part of the decision-making process.
- Seek second opinions if there is disagreement between your consultant and surgeon or if you feel your concerns are not being heard.