This topic is about the experiences of people who have undergone rectum and anus removal, particularly focusing on the hospital stay and recovery process. The person sharing their story has had a permanent ileostomy since 2011 and is preparing for the possibility of having their rectum removed. They are seeking advice and insights from others who have been through similar surgeries. Here are some helpful points gathered from various experiences:
1. Hospital stays without complications typically last between 5 to 8 days. Some people reported stays of 5 days, 7 days, 8 days, or about a week.
2. Longer hospital stays can happen if complications arise, such as infections or unexpected surgical issues. In some cases, this extended the stay to 3 weeks or even up to 4 months.
3. Initial recovery at home usually takes about 4 to 8 weeks. Returning to work can vary from 4 to 12 weeks, depending on how quickly you heal and the nature of your job.
4. Sitting can be uncomfortable for the first few weeks. Many people found it more comfortable to lie on their side or stand, and some used a special air bed for sleeping. A coccyx or wedge cushion was often more helpful than a donut cushion.
5. Stitches are typically removed around 2 weeks after surgery, and many people noticed a significant reduction in pain and pressure afterward.
6. Pain management is important, and prescribed painkillers are commonly used. Expect some soreness until the wound starts to heal and get airflow.
7. For comfort, hot showers directed at the backside can help relieve itching and tightness. Keeping a cushion handy for car rides or long periods of sitting is also recommended once sitting is allowed.
8. It's normal to experience phantom or pressure sensations, like feeling the need to pass stool or gas. These sensations usually decrease over time.
9. Emotional experiences vary widely. Some found the recovery very challenging, while others found it easier than expected. However, everyone agreed that recovery is possible, and life can return to normal, including full-time work, long drives, and even physically demanding jobs.
10. The choice of surgeon, your overall health, and whether complications occur are major factors that influence the length of hospital stay and recovery time.
11. For those who have undergone a BCIR (Barnett Continent Intestinal Reservoir) procedure, there were minimal issues with the backside, aside from a temporary drain.
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