This topic is about dealing with persistent pain around an ileostomy site, especially when coughing. The person who started the discussion has had an ileostomy for six years and is experiencing sharp, stabbing pain around the stoma, which has become more intense due to a cold. They are curious if others have faced similar issues. Here are some insights and advice shared by others:
1. It's common for people to experience similar pain years after surgery. Activities like coughing, sneezing, heavy lifting, or bending can aggravate the stoma area because it remains a weak spot in the abdominal wall.
2. If the pain continues after your cold has passed, it's a good idea to consult your surgeon or gastroenterologist. Persistent or worsening pain might indicate:
- An abdominal or parastomal hernia.
- Scar-tissue adhesions or strain on severed muscles.
- Residual disease in the rectal "stump" or an irritated nerve from surgery.
- An improperly constructed or poorly positioned stoma.
3. Scar tissue or adhesions can cause constant discomfort with everyday movements. Practicing careful body mechanics, like supporting your abdomen with a pillow when coughing or sneezing, using armrests or levers slowly, and avoiding sudden bends, may help reduce flare-ups.
4. Check if the appliance tape is pulling on abdominal hair, as this can cause pain. One person found relief by removing hair around the wafer area. It's advised to:
- Avoid chemical depilatories like Nair, which can cause burning.
- Consider using a device called "No No" for painless hair removal.
5. Regular core-strengthening exercises, done under medical guidance, can sometimes help reduce muscular strain. However, be cautious, as over-exertion might worsen the pain.
6. If you suspect surgical issues, seeking a second opinion from an experienced colorectal or ostomy surgeon, possibly at a large teaching center, could be beneficial.
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