This topic is about an unexpected and concerning situation where someone with an ostomy woke up to find their pouch had burst during the night, resulting in a bed soaked with blood, but no stool. This was the second time it happened in two years. After the first incident, a doctor compared it to a nosebleed that might happen occasionally. A recent endoscopy showed everything was clear. The person is reaching out to see if others have experienced something similar.
Here are some helpful pieces of advice and insights for anyone facing a similar situation:
1. If you experience more than a light smear of blood, it's important to seek medical attention promptly. Contact your stoma nurse or doctor if the blood is flowing or if the pouch fills with blood.
2. While slight bleeding from a stoma can be normal, a pouch filled mostly with blood is not typical. It's important to get checked to rule out other causes.
3. After a bleed, make sure to monitor your iron levels and stay well-hydrated.
4. Review any medications you are taking, especially anticoagulants or antiplatelets like Clopidogrel, Aspirin, or Warfarin, as they can increase the risk of stoma bleeding. Inform your healthcare team about these medications.
5. A practical tip from a stoma nurse: if blood wipes off on tissue while cleaning, it is usually acceptable. However, if there is spontaneous, continuous bleeding, it requires urgent medical attention.
6. Large bleeds can sometimes come from small ulcers or bumps at the mucocutaneous junction. Cauterization might stop the bleeding, but it could recur.
7. Recurrent ulcerative lesions around the stoma might be Pyoderma Gangrenosum, which is an extra-intestinal manifestation of inflammatory bowel disease. This condition requires specialist input for diagnosis and management. You can search for images online for comparison and consult a dermatologist or colorectal surgeon if you suspect this condition.
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