This topic is about a person who has Crohn’s disease and an ileostomy, and is experiencing elevated liver enzymes after starting Remicade (infliximab) treatment. They are concerned about the potential need to stop Remicade and are seeking advice on alternative treatments to protect their small intestine. Here are some helpful insights and advice shared by others:

1. Continuous monitoring is important. Many people emphasize the need for regular lab work and close communication with your doctor while on biologic medications. This helps in adjusting dosages, vitamins, and other medications based on blood test results.

2. Allow your body time to heal after major surgery. Recovery can take longer than five months, and some unusual lab results or symptoms might be due to the healing process rather than the medication.

3. Don’t assume every new symptom is related to the medication until confirmed by tests. Keep a detailed log of your symptoms and share it with your doctor. Diagnostic scans like PET or ultrasound can help rule out other causes.

4. Consider alternative biologic therapies. Humira (adalimumab) is mentioned as a successful alternative for those who cannot tolerate Remicade. Some have reported better disease control and manageable side effects with Humira after 18 months.

5. Stay hopeful, as there are multiple medication options available. Besides Remicade and Humira, gastroenterologists have other treatments for Crohn’s disease. It’s important to keep monitoring and trying different medications under medical guidance.