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May 07, 2012

Terrified of Ileostomy Reversal - Seeking Advice and Support

The topic is about the concerns and decisions surrounding an ileostomy reversal, which is a surgical procedure to restore normal bowel function after having an ileostomy. This person has been living with an ileostomy since an emergency surgery and is now considering a reversal. Here are some insights and advice shared by others in similar situations:

- The person has been dealing with severe skin issues around the stoma, which causes pain and makes it difficult for the pouch to stay in place. This has led to feelings of isolation, especially during the hot and humid summer months in Georgia, which also makes dehydration a concern.

- A gastroenterologist has recommended consulting a highly regarded colorectal surgeon in Atlanta for a possible reversal, while the original surgeon suggested waiting a full year before considering it.

- Important questions to consider include how long to wait before a reversal, whether to consult general or colorectal surgeons, and how to decide which medical professional to trust.

- The stoma is flush with the skin, which may be contributing to adhesion problems. Initially, there was a lack of proper ostomy education and support, but eventually, a competent WOC nurse was found to help.

- The person has already consulted one colorectal surgeon and is planning to see at least one more, as well as the original surgeon, before making a decision. They have also experienced rectal gas and mucus, which was an emotional reminder of normal bowel function.

- It is advised to seek multiple expert opinions, ideally from board-certified colorectal surgeons with extensive experience in reversals. Local support groups can be a good resource for finding surgeon referrals.

- If considering staying with the original surgeon, ensure they have a high volume of reversal surgeries and expertise in colorectal procedures.

- For skin and appliance issues, an experienced WOC nurse should assess the situation. Specialized products may be needed for flat or retracted stomas.

- To manage hydration and leakage in the heat, keep electrolyte solutions handy and monitor fluid intake. Addressing the adhesion problem is crucial.

- Recovery from a reversal can involve significant pain, fatigue, and irregular bowel patterns. A strict low-residue diet may be necessary initially, and complications are possible, but many find the reversal worthwhile.

- The waiting period for a reversal can vary. Some surgeons may allow it as early as four months, while others prefer waiting up to a year, depending on individual healing and health factors.

- Emotional support is important. Acknowledging fear and tears is normal, and connecting with ostomy support communities can offer hope and practical advice.
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