This topic is about someone who had a urostomy 18 months ago and is now experiencing some concerns. They are dealing with a larger bulge on the opposite side of their stoma, which might be a parastomal hernia, and daily leakage that seems to come from the ureter or vagina. They are seeking advice and insights from others who might have similar experiences. Here are some points that might be helpful:
1. A bulge on the abdomen after surgery can sometimes be a parastomal hernia, but it can also be normal post-surgical swelling. It's important to have it monitored by a stoma nurse or consultant.
2. Experiencing leakage that isn't from the stoma appliance but from the ureter or vagina can be concerning. It's not uncommon for some discharge to occur after major surgery, as the body adjusts and heals.
3. If the leakage began 6 months after surgery and is not from the pouch, it might be worth discussing with a healthcare provider. Some people find that a ureteric stent can help reduce leakage.
4. Symptoms like trapped wind, tummy ache, and vaginal soreness can be uncomfortable. These might be related to the surgery or other factors like hormone replacement therapy (HRT) or past treatments like radiotherapy.
5. It's understandable to hope that further surgery won't be necessary. Regular follow-ups with a consultant and stoma nurse can help manage these concerns and provide reassurance.
6. Many people with a urostomy have similar worries and find it helpful to talk to their healthcare team for personalized advice. It's important to address any potential hernia or pelvic issues early on.