This discussion revolves around the experiences and considerations of someone with a conventional ileostomy who is exploring the possibility of switching to a continent option, specifically the BCIR (Barnett Continent Intestinal Reservoir) or a J-pouch. The person is dealing with thick ileostomy output despite high fluid intake and is seeking advice on satisfaction rates, potential complications, and recommendations for surgeons and locations.
Here are some insights and advice shared by others:
1. Satisfaction with BCIR:
- Many individuals chose the BCIR or K-pouch to avoid the frequent bowel movements associated with a J-pouch, which can be 8-10 times a day. About 90% of those who opted for BCIR or K-pouch are pleased with their decision.
2. Surgical Centers and Surgeons:
- The true BCIR procedure is available at the BCIR Center in St. Petersburg, FL, and a program in California.
- The K-pouch, which is similar but with slight technical differences, is offered in Dallas, TX, by Dr. Ernest Jacobson and Dr. Lichliter.
- The Florida BCIR program is highly regarded, with excellent hospital care.
3. Reported Outcomes:
- Positive outcomes include continent control and significant lifestyle improvements.
- Negative experiences include complications such as fistulas and strictures, which in one case led to a reversal back to a Brooke ileostomy after multiple surgeries and a challenging recovery.
4. Decision Factors:
- Reasons for choosing surgery include long-standing ulcerative colitis, failure of medication, and increased risk of colon cancer.
- Surgery timing might be affected by active rectal disease or frequent obstructions.
5. Bowel Preparation for BCIR/K-pouch:
- A large-volume bowel prep is required, and Miralax prep is not permitted at the Florida center. A tip shared is that this will be the last prep needed.
6. Lifestyle Tips:
- If traveling to Florida for surgery, consider spending extra time at the beach.
- Expect a hospital stay of 11 to 14 days for uncomplicated cases, with the possibility of a longer stay if complications occur.
7. Thick Ileostomy Output:
- No specific solutions were provided for managing thick output, as the focus was more on exploring continent-pouch options rather than stoma management.
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