Planning a road trip across the Western U.S. can be an exciting adventure, but if you have an ostomy, it might also bring some worries. Concerns about finding restrooms, managing pouch changes, and dealing with odors in a car can be daunting. Here are some helpful tips and insights from fellow travelers with ostomies to make your journey smoother and more enjoyable:
1. Consider colostomy irrigation if you have a descending or sigmoid colostomy:
- Many travelers find they can go 24 hours or more without output after irrigating.
- Learn the technique with your doctor before the trip. It requires a private bathroom and clean water, which you can find at hotels or motels.
- Even with irrigation, you can manage gas with products like BEANO before meals or GAS-X after meals.
2. Carry an easy, discreet "emergency empty" kit:
- Include small Zip-Loc or sturdy freezer bags and sanitizing wipes.
- To use, open the Zip-Loc, lower the pouch outlet inside, drain, wipe, seal the bag, and dispose of it at the next trash stop.
- Alternatively, line a wide-mouth container with a plastic baggie, set it on the car bumper or ground, drain, seal, and go.
- Keep multiple baggies or Zip-Locs in the car to eliminate the fear of no restroom access.
3. Manage odors and leaks:
- Travel with a pocket-size deodorizer spray for unexpected issues.
- Pre-cut extra wafers/flanges and pack more supplies than usual in a carry-on or dedicated road-trip tote.
- Consider using Colo-Majic disposable pouch liners to avoid draining and cleaning the pouch. Be cautious, as very full liners can clog toilets.
4. Be mindful of food and drink:
- Avoid carbonated drinks that can cause the pouch to balloon and skip gassy foods the night before.
- Opt for smaller, more frequent snacks instead of large meals.
- Stay well-hydrated, especially in desert climates.
5. Prepare a supply checklist for the car:
- Pack extra pouches, pre-cut wafers, adhesive remover wipes, and barrier wipes/rings.
- Include Zip-Loc or freezer bags, a lined container, sanitizing wipes, and deodorizer spray.
- Bring BEANO, GAS-X, or similar anti-gas tablets.
6. Adopt a positive travel mindset:
- Practice emptying or changing in confined spaces close to home to build confidence.
- Remember that all travelers need bathroom breaks; your routine is just a bit different.
- Keep stress low, as worry can trigger gas and faster output.
7. Real-world reassurance:
- Many have successfully completed long drives, such as 2,000–3,300 km across outback Australia, 2½-week West-Coast U.S. tours, and 125,000 road-miles/year trucking careers, all with ileostomies or colostomies, by using these tips.
Enjoy your road trip with confidence and peace of mind!
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