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Oct 26, 2012

Need advice on managing sweat and movement with ileostomy during physical activities

This topic is about managing the challenges of having an ileostomy while engaging in endurance cycling, especially in hot and dry conditions. The person sharing their experience has had an ileostomy for 20 years and recently started facing issues due to heavy sweating and constant motion during long bike rides. Here are some insights and advice that might help:

- The person previously used Smith & Nephew Skin-Prep and ConvaTec Sur-Fit Stomahesive wafer with integrated tape, along with a 10" open-end pouch and a mini-pouch for water sports, with great success.

- After moving to a drier climate and starting long bike rides, they experienced wafer adhesion loss around 40 miles and total failure at about 55 miles, along with severe skin breakdown around the stoma.

- Storing and discarding used gear while cycling became difficult, and chafing on the abdomen from the pouch was an issue. Various tapes were tried for protection, but results varied.

- Trials with Hollister New Image Flextend provided a softer feel but possibly worse adhesion and more movement.

- Paste was eliminated as it seemed to cause output to wick under the wafer.

- A dermatologist suggested using an aluminum-chloride solution (antiperspirant) under Skin-Prep, but the ostomy nurse had no further suggestions.

- The person plans to try an elastic ostomy belt and test Cymed products, which do not require convexity, and will use an indoor trainer to test new setups under heavy sweat conditions.

Here are some practical solutions and advice from other active ostomates:

1. Use an elastic ostomy belt with the pouch/wafer to keep the appliance snug against the body and reduce movement. Many riders find it helps prevent leakage despite heavy sweating.

2. Consider Cymed one-piece systems with MicroSkin adhesive, which are designed for active users and water exposure. They may be suitable for flat stomas.

3. Use the winter or off-season to test new wafers, belts, and tapes on a treadmill, trainer, or roller. This way, any issues can be resolved before the next summer's rides.

4. Some users find that applying antiperspirant (aluminum chloride) under the wafer helps, though results can vary from person to person.

5. For tape-related rashes or additional skin protection, try Scanpoor tape. It's a breathable, paper-like "second skin" that adheres well through showers, swimming, and hot tubs. It can be placed over the wafer's tape or on other friction points.

6. Keep a small roll of Scanpoor or your preferred hypoallergenic tape on rides for emergency reinforcement or to cover irritated skin.
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