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Apr 11, 2013

Struggling with Colostomy Pouch Leaks and Pain

Topic Explanation:
The discussion revolves around an individual who had a permanent colostomy in August 2012 and is struggling with the acceptance of their condition. They describe feelings of disgust and revulsion, and are experiencing practical issues with their colostomy pouches, such as frequent leaks and pain. They also mention having a hernia that causes significant discomfort. The individual is seeking advice and support on how to manage these issues and improve their quality of life post-surgery.

Advice and Helpful Insights:
1. Pouch Management and Leakage Prevention:
- Experiment with different types of pouches and sealing techniques to find what works best for you. Some users have had success with one-piece closed-end pouches for simplicity and ease of use.
- Consider using additional products like Eakin seals or barrier strips around the flange to improve the seal and prevent leaks.
- Proper skin preparation before applying the appliance is crucial. Avoid using soaps with moisturizers or perfumes as they can prevent a good seal.

2. Professional Support:
- Engage with a specialized nurse or ostomy care specialist who can provide personalized advice and support tailored to your specific needs.

3. Adjustment and Acceptance:
- It is important to give yourself time to adjust to the new reality of living with a colostomy. Many individuals eventually manage to lead normal, productive lives despite the initial challenges.
- Focus on controlling and managing the colostomy effectively as this can significantly reduce the psychological burden and help in coming to terms with the condition.

4. Community and Online Resources:
- Utilize online forums, blogs, and chat rooms for additional support and information. Sharing experiences and tips with others who are facing similar challenges can be incredibly helpful.

5. Medical Consultation for Pain and Complications:
- Consult your doctor regarding the pain and any noticeable complications such as a hernia. Professional medical advice is crucial to address these issues effectively.

6. Personal Mindset and Coping:
- Try to adopt a proactive and positive mindset. Acceptance of the condition can significantly improve your overall well-being and quality of life.
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