If you're preparing for ileostomy surgery, it's natural to have questions and seek advice from those who have been through it. Here are some helpful tips and insights shared by experienced ostomates:
- Arrange for pre- and post-operative support with an Enterostomal Therapy (ET) or Wound, Ostomy, and Continence (WOC) nurse.
- Have the nurse mark the best spot for your stoma while you are sitting, standing, and bending. Even a small difference in placement can make a big difference in comfort and help prevent leaks.
- If possible, meet with the nurse before your surgery to try on a real pouch. Fill it with water and wear it for a couple of days to get used to it.
- Many insurance plans cover home visits after you leave the hospital, which can be very helpful for hands-on learning.
- Be prepared for an adjustment period. It's normal to experience some leaks and frustration at first, but your confidence will grow with practice. Be patient with yourself and seek emotional support when needed.
- Use educational resources to your advantage. Watching YouTube videos on appliance changes can be very informative, and ostomy-supply companies often have helplines for additional guidance.
- When it comes to choosing an appliance:
- Hollister one-piece and two-piece drainable pouches are often recommended for their strong seals and security.
- Some people may have reactions to certain adhesives, so it's a good idea to try different brands early on to find what works best for you.
- If the standard 12-inch pouches feel too long, consider trying shorter 9-10 inch options.
- For daily bag care, every time you empty your pouch, pour a little water into the tail, swish it around, and drain until the water runs clear. This helps keep the pouch cleaner and reduces odor.
- Consider support garments and belts for added comfort and security:
- The Stoma Safe Plus elastic wrap, which costs around $30, has a built-in pouch pocket for everyday support.
- Stealth Belt offers belts that are suitable for swimming.
- Custom neoprene and vertical-holder belts are also available.
- Another custom option can be ordered from www.ostomybagholder.com.
- If you haven't already, discuss with your doctor the possibility of testing for underlying conditions, such as genetic screening for Familial Adenomatous Polyposis (FAP), which is a rare cause of bowel problems that can sometimes be overlooked.
- General coping advice:
- Accept help when it's offered and don't hesitate to reach out to the online community for any questions you might have.
- Remember that many people go on to lead full, active lives, including working, golfing, and swimming, after they recover from surgery.
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