This topic is about managing fatigue and protecting an ileostomy while enjoying extreme sports like BMX riding, skateboarding, and inline skating. If you love these activities but face challenges due to Crohn’s disease and a permanent ileostomy, here are some helpful tips and insights shared by others in similar situations:
1. **Managing Fatigue with Crohn’s/IBD**
- It's common to feel very tired, so it's important to listen to your body. Make sure to schedule extra rest, stay hydrated, and focus on eating foods rich in antioxidants and anti-inflammatory properties.
- Consider asking your gastroenterologist for a full blood workup or nutrient panel. Deficiencies in B-12, vitamin D, and iron are common after an ileostomy and can lead to low energy levels.
- Many people find they cannot absorb B-12 orally, so monthly intramuscular injections might be necessary.
- Some have found that taking 50,000 IU of vitamin D weekly for 8 weeks, along with iron supplements, significantly boosts their energy.
2. **Hydration Strategies**
- Chronic dehydration can make fatigue worse. Increase your fluid intake and consider replacing some regular drinks with daily electrolyte beverages to boost energy and help thicken ileostomy output.
- One person mentioned a product called “Hydra Booster” that claims to enhance the hydration quality of drinking water.
3. **Protecting Your Stoma During Sports**
- Consider using products like the Stealth Belt, which is a support belt that conceals and stabilizes the pouch, and is popular for water sports.
- Stoma guards are rigid covers that protect the stoma from impact.
- Ostomy Armour offers a rigid protective plate integrated into a belt for added protection.
4. **Cycling After Anal Closure**
- Saddle pressure can irritate or reopen closure sites. It's advisable to choose a bike seat that minimizes pressure on the midline or to ride standing up when possible.
5. **General Motivation and Mindset**
- Many people share the frustration of feeling mentally ready but physically limited. Staying positive and adapting your activities can help maintain a good quality of life.
- Taking short, planned breaks to empty or check your pouch can help keep your exercise sessions worry-free.
These insights aim to help you continue enjoying your favorite sports while managing your health needs.
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