This topic revolves around the consideration of a colostomy for someone dealing with severe and unmanageable Irritable Bowel Syndrome (IBS). The person has tried various treatments without success and is now exploring the possibility of a colostomy as a last resort to improve their quality of life. They are seeking experiences from others who have undergone similar procedures to present to their healthcare provider.

Here are some insights and advice shared by others:

1. In the U.S., colostomies and ileostomies are commonly performed for conditions other than Inflammatory Bowel Disease, such as diverticular disease. These procedures can be temporary and are often reversed without complications.

2. Many individuals report that having an ostomy has provided them with predictable bowel function or complete relief from symptoms. Some even wish they had opted for surgery sooner.

3. Stoma irrigation can enhance predictability and reduce the need for frequent appliance changes.

4. It is beneficial to consult with a stoma specialist nurse, such as a WOCN in the U.S. or an ET nurse, who can advocate for you during surgical evaluations and offer education before and after the operation.

5. Consider seeking additional surgical opinions, as some surgeons may be more open to performing stoma surgery for refractory functional bowel disorders.

6. Challenge the notion of an ostomy as a "last-resort nightmare." Many people with ostomies return to work, travel, maintain relationships, and engage in physical activities.

7. Connect with local or national ostomy associations for peer support, educational materials, and referrals.

8. Some surgeons suggest alternatives like sacral nerve stimulation (SNS) for conditions like slow-transit constipation. However, this option has a 50% success rate and may involve funding delays, trial requirements, and potential nerve-related side effects.

9. When comparing SNS to an ostomy, consider factors such as expected quality-of-life improvements, speed of access, long-term maintenance, complication profiles, and any personal health conditions.

10. If you decide to proceed with surgery, be aware of potential psychosocial challenges such as body image issues, intimacy concerns, and depression. Address these early with counseling and support networks.

11. Members have given permission for their experiences and comments to be shared with healthcare providers.