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Oct 11, 2013

Seeking advice - Colostomy pouch after kidney surgery?

This topic is about a situation where a person needed a colostomy after undergoing keyhole surgery to remove a kidney, known as a nephrectomy. The family is trying to understand how common this is and what steps they should take next. Here are some insights and advice that might help:

1. Colostomies are not typically needed after kidney removal surgery. If one is required, it usually suggests there was some injury or scarring to the bowel during the initial surgery.

2. It's important to gather all the details about the initial surgery complications:
- Request the operative notes, radiology reports, pathology, and discharge summaries.
- Review these documents with your father present and ask the surgeon to explain what happened in detail.

3. Consider seeking independent medical opinions:
- Consult with a urologist for the kidney surgery and a colorectal surgeon for the bowel issues.
- Make sure to provide each specialist with all relevant records and imaging before your appointments.

4. If you are not satisfied with the current medical team, consider changing surgeons. You can also ask the hospital for referrals to senior staff with the necessary expertise.

5. In the UK, you can contact the Patient Advice & Liaison Service (PALS) for assistance in obtaining records, arranging second opinions, and filing formal complaints.

6. If you are considering legal action:
- Speak with a solicitor who specializes in clinical negligence. Many offer initial consultations and "no-win, no-fee" agreements.
- Be aware that in the UK, there is generally a three-year limitation period from when potential negligence is first recognized, so it's important to act quickly.
- Even if you are not interested in litigation, a solicitor’s letter can sometimes expedite access to information.

7. Be mindful of the emotional aspects and set realistic expectations:
- Doctors might downplay the impact of a temporary stoma, so it’s important to advocate for clear answers.
- While unexpected complications can happen, patients should not have to deal with the consequences of avoidable mistakes.

8. Keep an eye on recovery:
- Follow the surgeon’s plan for colostomy reversal, which is usually around six months.
- Ensure the bowel and abdominal tissues are healing properly and report any new pain or changes in digestion immediately.
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