This topic is about a couple considering returning to a colostomy after an unsuccessful reversal surgery. The wife had a temporary stoma due to very low rectal cancer, and after a reversal four years ago, she now has a colonic J-pouch. Unfortunately, she still experiences constant urgency and soreness, making everyday activities challenging. They are exploring the option of a permanent colostomy and are seeking advice and experiences from others who have faced similar situations.

Here are some insights and advice shared by others:

1. Quality of Life: Many people have found that life after a reversal can be more difficult than living with a stoma. Frequent, painful bathroom trips and incontinence can make daily life challenging. Some have chosen to return to a stoma because they felt physically better and more independent.

2. Experiences with Re-ostomy: One person surveyed about 100 ostomates and found that only a small number of those with Crohn’s disease managed without a bag long-term after a reversal. Another person had a reversal, suffered complications, and now has two ostomies again, remaining undecided about another reversal.

3. Colostomy vs. Ileostomy: A colostomy is often considered easier to manage than an ileostomy. It typically involves thicker output, fewer changes, less risk of dehydration, and usually requires emptying only once a day.

4. Research and Decision-Making Tips: It’s helpful to talk directly with people who have had a re-ostomy or live with a permanent colostomy. Gathering statistics and personal stories can help weigh the odds realistically. Ultimately, the decision should focus on the patient’s daily comfort and lifestyle priorities.

5. Practical Coping Hint While Undecided: When dining out, request a table near the restroom and try to ignore any stares about frequent trips. Small adaptations can make outings more manageable in the meantime.