Is anybody applying for social security disability if they have an ostomy that has an extreme amount of output? I didn't know what the chances of getting social security disability would be or what helpful tips would be good to ask to be able to get social security disability. I even used more than the allowed amount allowed by the insurance company. They call it overage for the bags. Also, a parastomal hernia.
danthe Man
Apr 04, 2025 2:46 am
SusanT
Apr 04, 2025 3:19 am
I got disability from my cancer and am currently on the Ticket to Work program, which helps me get off disability.
I recommend you go through a law service that assists with the process. It is not easy to dot all the i's and cross all the t's.
This is a remarkable community of 40,833 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
Privacy is very important - your profile is not visible to the outside world.
Marjatta
This group has been my go-to during my loneliest hours whenever I've had a "bag blowout" at 3am and there was no one else in the world to talk to.
Because it's a global community, there's always someone here to lend an ear, provide advice, and just hold my hand if that's all I need.
Sure, there's also a lot of camaraderie, fun topics, and laughs, but the main reason I come here is for the total acceptance I get from the members. No one else on the planet could possibly "get" what I'm going through, not even my loving husband or supportive family.
The "Meet an Ostomate" forum is definitely a one-of-a-kind family, which I am very proud to belong to.
M
xo
Kas
Apr 04, 2025 10:30 am
I applied during my cancer and subsequent surgeries that led to the ostomy and was denied even though I was completely unable to work for 18 months and had no income. From what people have told me since, you always get denied the first time, and it's best to have a lawyer.
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SusanT
Apr 04, 2025 2:02 pm
I was approved the first time, but I have heard that most people get initial rejections. My legal service even told me it might happen. I credit them with the first-time approval. There are a lot of little things that you won't know without help.
For example, I received a letter telling me to appear at a mental health evaluation at a certain date and time. I thought it was ridiculous since I wasn't claiming mental health issues. There was a number on the letter to call and reschedule. My legal service warned me that they get upset when you reschedule and can use that as an excuse to deny the claim. So I rescheduled my conflicting appointment with my oncologist instead. Such a little thing, but vital to know.
Hugo
Apr 04, 2025 2:27 pm
Ditto the advice from Susan and Kas. Get a lawyer. I worked for Social Security as a disability claims examiner. The last statistic I saw indicated that about 65% of initial applications are denied. At the first appeal level, called reconsideration, 85% are denied. Approval rates at a hearing with an Administrative Law Judge are about 45-50%. It can be an extremely long process. Among other factors, they will consider your age, the condition that led to you having an ostomy, and what complications the ostomy causes, such as frequently having to use the restroom. Above all, don't give up.
Stories of Living Life to the Fullest from Ostomy Advocates I Hollister
