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Nov 01, 2013

Countdown to Surgery - Fear, Ostomy, and Weight Loss

This topic is about a 51-year-old professional singer who is preparing for colorectal cancer surgery. The surgery is scheduled for November 14, 2013, and there is uncertainty about whether a temporary or permanent ostomy will be needed. The singer is dealing with several fears and concerns, including the possibility of lifelong fecal incontinence, the risk of public accidents during performances, and potential weight loss after surgery. Here are some helpful insights and advice shared by others:

- Weight Loss and Recovery:
1. The amount of weight lost after surgery can vary. Those who were anemic or unwell before surgery tended to lose more weight, while those in better health lost less.
2. It's beneficial to start walking in the hospital as soon as possible. This helps wake up the bowel, allows for a quicker transition to solid foods, and can help minimize weight loss.
3. If chemotherapy or steroids are not required after surgery, most people regain any lost weight quickly.

- Deciding on Temporary vs. Permanent Ostomy:
1. Some individuals with tumors close to the sphincter have opted for or required a permanent ostomy and have not regretted the decision.
2. Reversals without a rectum can lead to months of accidents and reliance on medications like Imodium, and may still result in further surgery.
3. It's okay to delay the decision until after surgery. Experiencing incontinence for a while can help determine if a permanent stoma is preferable.

- Performing and Daily Confidence:
1. The ability to sing is not affected by rectal removal.
2. Consider using specialty underwear and wraps from OstomySecrets.com for discretion on stage.
3. A wide hernia/support belt can help conceal the pouch and protect the stoma during physical activities.

- Practical Stoma Management Tips:
1. Keep the pouch emptied to avoid bulging under clothes.
2. Change the appliance before eating, as early food output can complicate changes.
3. Avoid using baby wipes around the stoma, as oil residue can prevent the wafer from sticking.
4. If leakage is a concern, always carry a "go-bag" with spare pouching supplies and a full change of clothes.

- Diet and Hydration, Especially with an Ileostomy:
1. Early outputs can be very liquid; foods like bananas, potatoes, pumpkin, custard, and marshmallows can help thicken the output.
2. Drink plenty of fluids, such as milk, smoothies, and oral electrolyte solutions, to replace lost salt and water. Rest when feeling tired.

- Coping with Fear:
1. Focus on the immediate next step, like opening a car door or pushing an elevator button, to avoid dwelling on worst-case scenarios.
2. Remember that modern ostomy technology is reliable, and many people with permanent ostomies lead active lives, including performing, coaching sports, and engaging in physical activities like renovation work, hockey, and rugby.
See full discusison
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