This topic is about someone dealing with severe bladder incontinence while waiting for a urostomy. They have been living with significant bladder issues for over eight years, using different types of catheters but still experiencing constant leakage and pain. They are scheduled for a urostomy but are struggling with the wait, feeling isolated and desperate for a better quality of life. Here are some pieces of advice and insights shared by others:

1. Many people find that life with an ostomy or urostomy can be much better. You can expect a significant improvement in comfort, mobility, and confidence once the stoma is created.

2. If the wait for surgery seems too long, consider reaching out to your medical team. Politely but firmly ask about the reasons for the delay and whether the operation can be prioritized. Highlight your current pain, frequent infections, and the impact on your mental health.

3. It is important to choose a qualified colorectal or urostomy surgeon rather than opting for an emergency procedure. The quality of the surgical technique and proper stoma placement are crucial for long-term success.

4. From personal experiences, dealing with incontinence and frequent accidents before a permanent colostomy was mentally exhausting. However, learning to manage the necessary equipment, like pouches and accessories, can restore your quality of life. This adaptation process is similar for a urostomy.

5. Coping strategies from managing chronic conditions like Crohn’s disease can be helpful. Developing practical skills, maintaining hope, and focusing on the upcoming change can help manage the emotional toll until surgery.