This topic is about a person who has been living with a sigmoid colostomy for nearly four years and is now sharing their experience and decision to undergo a colostomy reversal. Here’s a bit more about their journey and some advice they’ve gathered along the way:
- The individual had a colostomy due to an emergency surgery for a diverticulitis-related perforation. Over the years, they have adapted well to life with a stoma, enjoying activities like gym workouts and tennis, and maintaining confidence in managing their stoma with a closed pouch and occasional medications for output control.
- Despite being comfortable with the colostomy, they decided to go for a reversal at the age of 56, partly encouraged by their wife, who was recently diagnosed with breast cancer. They emphasize the importance of a positive attitude and express gratitude for modern ostomy products and the support from online forums, although they admit to feeling anxious before the surgery, even with a highly regarded surgeon.
- During the surgery, the surgeon encountered an unexpected issue with a stricture or scarring in the lower colon, which led to converting the procedure to an open surgery. This resulted in a hand-stitched anastomosis and the creation of a temporary loop ileostomy.
- After the surgery, the individual faced several complications, including a prolonged ileus, a 9-day hospital stay, severe fatigue, reflux, significant weight loss, and muscle atrophy. Initially, no post-operative medications were provided.
- A follow-up surgery to take down the temporary ileostomy is scheduled, and the individual is considering whether to continue with the same surgeon. They are also consulting an attorney regarding potential issues with pre-operative evaluation and informed consent.
Here are some pieces of advice and insights shared by others:
1. Be aware of the possibility of incisional and parastomal hernias after a reversal. There are resources available, such as a forum blog post titled “No, I’m Not Fat...,” that provide more information on this topic.
2. Members who have undergone colostomy reversals offer positive reinforcement, noting that while initial difficulties are common, long-term function can return to normal. One member shared their experience of having three problem-free years after their reversal.
3. General encouragement is given to those considering a reversal. Success is possible, and having personal strength, being well-prepared, and maintaining realistic expectations can help manage the challenges of the surgical journey.
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