This topic is about someone who has been living with an ileostomy since 2007 and is seeking connection and support after experiencing a divorce. The person is looking to meet or chat with others who have, or will soon have, an ostomy, whether they are nearby in the Dallas/Fort Worth area or elsewhere. They recognize the challenges of living with an ostomy but are determined to move forward and stay socially connected. Here are some pieces of advice and insights shared by others:
1. Marital and relationship experiences:
- Many have experienced failed marriages or partnerships when their spouses couldn't handle the realities of living with an ostomy. It's important to remember that this lack of support is the partner’s issue, not the fault of the person with the ostomy. Moving on to healthier relationships is encouraged.
- Even when both partners have ostomies, it's crucial to nurture compatibility and mutual support.
2. Finding community and companionship:
- Joining a local ostomy association can be beneficial. Some have found lasting friendships and even partners through these groups.
- Online forums can be a great alternative if there are no local groups available. People from various places, including northeast Texas, California, England, and Maine, are open to private chats.
3. Emotional resilience and lifestyle:
- Keeping an active life by working, cultivating friendships, volunteering, and traveling can help restore confidence and expand social circles.
- Accept the ostomy appliance as a part of you. There is nothing to be embarrassed about; view it like any other prosthesis and live openly.
4. Practical notes:
- In the UK, the National Health Service provides ostomy equipment at no personal cost, which is useful information if considering relocation or travel.
- Regular follow-ups, such as CT scans and CEA blood tests, can reassure cancer survivors. It's common to have lingering concerns like chemotherapy-induced peripheral neuropathy and Social Security disability reviews, which are worth discussing with healthcare providers.
See full discusison