This topic is about a person who has been living with a permanent ileostomy for seven years and is now about six weeks pregnant. She is experiencing unusual symptoms, such as significant pressure in the rectal area and daily passage of fecal matter through the back passage, which are not typical for her. She is curious if these symptoms could be related to her pregnancy and is seeking advice from others who have ostomies.

Here are some helpful insights and advice:

1. If you have had a total panproctocolectomy and are experiencing stool passage from the rectum, this is not normal. It is important to seek an urgent assessment from a stoma nurse or, even better, a colorectal consultant.

2. Do not delay in getting professional medical advice, especially during pregnancy. It is crucial to keep trying to contact your stoma team for guidance.

3. The community offers support and stresses the importance of prompt medical follow-up to ensure the health and well-being of both the mother and the baby.