Ileostomy and Pregnancy - Early symptoms causing discomfort?

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Lilly
Jan 29, 2015 7:39 am

Hi everyone.

I've had an ileostomy for the past 7 years with lots of surgery since then. I've recently found out I'm pregnant 'about 6 weeks'. I'm having a lot of problems with pressure on my back passage and even feces coming out every day, which isn't usual for me so it's extremely uncomfortable. I'm just wondering if anyone knows if it could be related to the pregnancy even though it's so early on? I'd be grateful for anyone's advice.

Keep well, ostomates.

Past Member
Feb 04, 2015 8:44 am

Hi Lily, have you had a panproctocolectomy and ileostomy? If you have and it's a permanent ileostomy, then you should not be having feces coming from there. Please go and see a stoma nurse as a matter of urgency!!!

Good luck with your pregnancy.

Posted by: iMacG5

Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike

Lilly
Feb 04, 2015 10:37 am

Thank you so much Carida51 for your reply. I really do appreciate it. Yes, I've had the full works and left with a permanent ileostomy. I'll take your advice and book to see my stoma nurse ASAP. Thanks again for your support.

honor
Feb 04, 2015 6:54 pm

Hello Lilly.

I'm pleased for you being pregnant. Good luck and take care. I hope that you have talked with a stoma nurse or, better still, a colorectal consultant and had some good advice. I agree with Cariad, please do it soon.

Lilly
Feb 04, 2015 7:46 pm

Thank you very much, Honer. I really appreciate your support. I've tried and tried getting hold of my storma nurse but no joy today, so I'm gonna try again tomorrow. I'll keep you updated.

Hope you are well,

Many thanks, Lilly.

 

My Ostomy Journey: LeeAnne | Hollister

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Lilly
Feb 04, 2015 7:48 pm

Apologies, Honor. I spelled your name wrong.