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Feb 05, 2015

Ulcerative Colitis and Ileostomy: Concerns About Recurrence

This topic is about a concern that can arise after having an ileostomy due to ulcerative colitis. The person who shared their experience had an ileostomy but recently noticed rectal bleeding. A medical examination found an ulcer, leading to worries about whether ulcerative colitis can come back after surgery and what should be done next.

Here are some insights and advice shared by others:

- Possible reasons for the ulcer or bleeding after an ileostomy:
1. There might have been an existing ulcer that became active after stopping medications.
2. Diversion proctitis could occur, which is a type of inflammation similar to ulcerative colitis in the disconnected rectal area, even if there's no stool passing through.
3. The surgery might not have completely controlled ulcerative colitis, leaving some diseased tissue behind.

- Ways to manage the situation:
1. Topical steroid enemas can be used. These are beneficial because the steroid is absorbed minimally into the body, avoiding the side effects usually associated with oral steroids like prednisolone.
2. If the bleeding or discomfort is mild, some people choose to simply monitor the situation and let the area heal naturally.

- A shared personal experience: After a similar surgery, one person found that their remaining colon segment was inflamed and ulcerated during a check-up five months later. They experienced bleeding for about a week, which then stopped without needing medication. They are now in remission, with only rare episodes of bleeding.
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