This topic is about someone who recently had surgery to repair a parastomal hernia and is now experiencing some concerning symptoms. They are seeking advice and insights from others who might have gone through similar experiences. Here’s a summary of the situation and the advice shared:
- After the hernia repair, the person noticed a new, smaller bulge around the stoma site.
- They are experiencing constant burning discomfort and sharp pain, especially before a rush of output into the pouch, which they did not have before the surgery.
- There is anxiety about potential complications, especially since a previous hernia repair led to an unexpectedly long hospital stay.
- A CT scan is scheduled to investigate these symptoms, and they are wondering if these issues are normal four years after having an ileostomy.
Additional background includes:
- The original ileostomy involved the removal of the rectum, requiring months of internal packing.
- The stoma was relocated due to blockages, and the person has undergone three hernia operations.
- The latest CT scan was done without IV contrast due to difficulties with venous access, raising concerns about its effectiveness in identifying the problem.
Advice and insights from others include:
1. Pain, burning, and pre-output spasms are not typical after hernia repair. Possible causes could be a stricture, adhesions, kinking, or a recurrent hernia. Imaging, preferably a CT scan with contrast, is recommended to determine the cause.
2. Recurrence of hernias is common, with some experiencing very large hernias and complicated recoveries. Repeat surgeries can become increasingly challenging.
3. Engaging in heavy physical work, such as truck driving, might rupture previously placed mesh, suggesting that strenuous activities could contribute to hernia recurrence.
4. A stoma-care nurse mentioned a new device being developed to help manage issues like retracted stomas, parastomal hernias, prolapse, or cut stomas, and is looking for research collaborators.
5. Emotional support strategies include prayer, humor, and support from partners, friends, and community groups, which can help in coping with the fear of further surgery.
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