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41,439 members
Nov 29, 2009

Surviving and Thriving After Surgery: A Personal Journey

This topic is about finding gratitude and strength after an unexpected and life-changing event—emergency colostomy surgery. A 39-year-old woman shares her journey of coming home after what was supposed to be a routine hysterectomy, which turned into four surgeries, sepsis, and a permanent colostomy. Initially overwhelmed and depressed, she found solace in a song that reminded her of the gift of being alive. She shares this to encourage others facing similar challenges and wishes everyone a beautiful day.

Here are some insights and advice shared by her and others:

1. Living with an ostomy can be frightening, whether it's temporary or permanent. It's important to encourage each other through this journey.

2. Her mother validated her feelings by acknowledging that what she went through was "absolutely horrible," which helped her process her mixed emotions of gratitude and grief.

3. After reading another member's story, she realized that others have faced even tougher journeys and expressed gratitude for the kindness of the community.

4. Positive mindset and gratitude:
- Focusing on being alive rather than on what was lost can help with coping.
- Naming the stoma, like calling it "Grace," can personify it and reinforce a sense of gratitude.

5. Acceptance vs. Reversal:
- One member successfully underwent a reversal and hernia repair, encouraging others to enjoy a "second chance."
- Another member chose not to pursue reversal after discussing risks with her surgeon and reports living well with the bag, experiencing far less pain than before.

6. Day-to-day living with an ostomy:
- Leaks and "explosions" can happen, but they are manageable and preferable to the pain experienced before surgery.
- Activities like swimming and wearing a bathing suit are still possible; an ostomy doesn't have to limit your life.

7. General encouragement:
- Maintaining a "positive mental attitude" is highlighted as the best strategy.
- Support from the community and loved ones is crucial in countering moments of sadness or self-pity.
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