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Nov 30, 2009

My Near-Death Experience and Life with an Ostomy Bag

This topic is about coming to terms with living with a permanent ostomy bag after a life-threatening bowel rupture. The person sharing their story went through a harrowing experience, spending six days in a critical state before waking up to find an ostomy bag attached to their abdomen. Initially, they were shocked and wanted to remove it. The physical recovery was slow, taking three months to walk unaided and a year to feel strong enough to consider a reversal surgery. However, after discussing with their surgeon, they learned that reversal could be risky and involve a long recovery. They decided to keep the ostomy permanently and now feel healthier, experiencing no more fainting or extreme pain, and even enjoying activities like swimming. Occasional leaks happen, but they are minor compared to past suffering. The main takeaway is to maintain a positive outlook, focusing on the fact that waste is leaving the body safely.

Here are some pieces of advice and insights shared by others:

1. Acceptance vs. suffering: People who have experienced severe pain before surgery often find it easier to accept an ostomy. Resistance might come from low self-esteem or the trauma of an unexpected operation.

2. Health maintenance: Long-term inflammatory bowel disease (IBD) can increase the risk of colorectal cancer. It's important to maintain healthy habits, such as not smoking, drinking alcohol minimally, and eating a balanced diet, regardless of whether a reversal is possible.

3. Reversal considerations: A reversal might be suitable for those with inactive disease and enough remaining colon. However, extensive previous surgeries, hernias, or limited bowel length can make a reversal complex or impossible.

4. Psychological framing: Viewing the ostomy bag as a sign of survival and resilience can be helpful. Focusing on practical day-to-day management rather than on what has been lost can foster a sense of empowerment.
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