This topic is about preparing mentally and practically for life with an ostomy, particularly for someone who has been living with severe Crohn’s disease and is about to undergo surgery that will result in a permanent ostomy. The person is looking for honest experiences from others who have adapted to life with a stoma, both the positives and the challenges.

Here are some helpful insights and advice shared by others:

- Many people find that their quality of life improves significantly after getting an ostomy, and they often say they wouldn’t want to go back to how things were before.
- There will be a learning curve and some challenges at first, but patience and a positive attitude can make a big difference.
- It can be helpful to read older forum posts and remember that people who don’t have problems often don’t post online.
- Online communities and videos can be great resources for support and information. Some recommended places include the UOAA forum, the Inspire ostomy group, and YouTube channels by fellow ostomates.

Before surgery, consider the following:

- If the stoma site is hairy, laser hair removal might be a good idea to make it easier to manage wafers.
- Being in good physical shape can help with a faster recovery.
- Make sure a WOCN nurse marks the stoma site to avoid issues with clothing and ensure the pouch fits well.
- Some people ask their surgeons to create a stoma that protrudes slightly for easier appliance fitting.
- Ordering free samples before surgery can be beneficial. Coloplast, for example, offers a practice kit with a mock stoma and bags.

When exploring products and solving problems:

- Gather as many free samples as possible from different manufacturers.
- Some recommended brands and products include Coloplast, Hollister, and Convatec.
- If you experience early leakage, soft-convex wafers might help.
- Alternating between different wafer models can reduce the risk of skin allergies.
- Stoma belts can help keep pouches secure and discreet.

For daily living and self-care:

- Keeping a food diary can be helpful, and many people find that eating four small meals a day works better than three large ones.
- Staying well-hydrated is important, as output increases with intake.
- Occasional rashes, leaks, or pancaking can happen, and it’s best to treat them with care.
- Being open with trusted friends can help, and having access to a private bathroom can ease concerns about odor.
- Clothing choices like loose leggings, swing tops, and long shirts can help disguise the pouch, while tight jeans might be uncomfortable.

For professional help and follow-up:

- Stoma nurses are a valuable resource for any questions or issues with appliances and skin care.
- If you experience persistent leaks or skin problems, ask about alternative products or convexity.
- Be aware of the possibility of post-op hernias and report any unusual bulges or leaks.

Finally, many people report feeling a newfound freedom from pain and discomfort after getting an ostomy, and they often realize how much better they feel once they’ve healed. Life can return to normal, with work, travel, parenting, and hobbies all becoming part of daily life again.