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Dec 02, 2016

Handling Reactions to Ostomy with Understanding and Forgiveness

This topic is about managing how others react to our ostomies with empathy and forgiveness. It explores the idea that people often don't know how to respond when they learn about an ostomy, and it suggests ways to handle these situations with understanding and patience.

- People are often unprepared for the news of an ostomy and may feel more uncomfortable than the person with the ostomy. It's important to remember that everyone means well, even if they don't always say the right thing.

- It's helpful to share information about your ostomy on a "need-to-know" basis and try to forgive any awkward comments, as most people lack the words or experience to offer comfort.

- Some have found that reading about others with more severe conditions, like spinal-cord injuries, can put their own challenges into perspective and encourage them to focus on doing their personal best.

- National Ostomy Day celebrations can feel uncomfortable for some, as they may seem to push acceptance rather than understanding.

- It's a challenge to balance honesty, privacy, and others' discomfort, and suggestions are welcome on how to manage these expectations.

Here are some pieces of advice and insights shared by others:

1. When people ask about your stoma, talk about it openly and highlight the positives. This can educate others and show resilience.

2. Share details only when it serves a purpose, keeping discretion in mind. There is a time and place for discussing these matters.

3. Lead by example. How you accept your situation can teach others how to react. Confidence, humor, or a straightforward approach can reduce awkwardness.

4. Embrace self-acceptance over self-pity. Owning who you are can deepen relationships and inspire others facing similar surgeries.

5. Understand that there is no single "right" response. Everyone is different, and it's okay if others don't have the perfect words.

6. View the ostomy as a solution, not a disease. This perspective can help reduce stigma and fear.

7. Support public awareness without aggressive tactics. Realistic and respectful education is more effective than celebratory events.

8. Helping others who are newly facing surgery can be beneficial for both sides. Sharing your experience can reassure them and show that normal living is possible.

9. Some prefer a straightforward approach, stating they have an ileostomy or colostomy and letting others handle their own reactions.

10. Remember that caregivers, partners, family, and friends may feel helpless. Patience and clear communication can ease their anxiety.
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