This topic is about transitioning from a long-term colostomy to an ileostomy, particularly for someone dealing with Crohn’s disease. The person is considering this change due to complications like a severe stricture and additional polyps. They are seeking advice on what to expect and how to manage the transition effectively. Here are some insights and tips shared by others who have gone through similar experiences:
1. Adjustment from Colostomy to Ileostomy:
- The adjustment can be challenging, but understanding the differences helps. Ileostomies often require more frequent emptying and careful hydration management.
2. Weight, Gas, and Medication:
- Weight loss is common initially due to nausea and reduced intake, but it varies long-term.
- Gas and noise can be less than with a colostomy but depend on diet. Foods like cruciferous vegetables and carbonated drinks can cause gas.
- Timed-release medications may not absorb well; consider switching to immediate-release or liquid forms.
3. Crohn’s Disease and Colon Removal:
- Removing the colon can reduce the risk of Crohn’s recurrence in the colon, but monitoring is still necessary as it can affect the small intestine.
4. Practical Issues and Tips:
- Expect to empty the ileostomy bag 6–15 times a day with thin, watery output.
- Hydration is crucial; drink plenty of fluids and consider sports drinks or electrolyte supplements.
- Skin care is important due to the watery output; use products like convex wafers and barrier rings to protect the skin.
- Consider using electric razors to prevent skin trauma and soothing wipes for any irritation.
5. Accessories and Products:
- Use belts and barrier rings that fit well with the new stoma size.
- Sports drinks like Powerade Zero and Gatorade can help with hydration.
- For comfort, consider using a waffle cushion for sitting and soothing products for skin care.
6. Diet and Blockage Prevention:
- To thicken output, eat bananas, potatoes, and chips. If it becomes too thick, hot tea can help thin it.
- Be cautious with foods that can cause blockages, such as nuts, coconut, and raw fibrous vegetables. Chew thoroughly and introduce them slowly.
7. Hernia Prevention:
- Support belts during activities and avoiding heavy lifting can help prevent hernias, which are common after ileostomy.
8. Quality of Life:
- Many find improved mobility and freedom after recovery, despite the increased maintenance. Educating yourself before surgery through forums, videos, and consultations with nurses can ease the transition.
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