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Jul 15, 2017

Need advice on hard mucus build-up with loop ileostomy

This topic is about dealing with a hard mucus build-up after having a loop ileostomy, which can be quite uncomfortable and challenging. The person who started the discussion is looking for practical ways to clear the mucus plug and prevent it from happening again. Here are some helpful insights and advice shared by others who have faced similar issues:

1. Anal Irrigation Techniques:
- Some people have found relief by irrigating the rectal stump with warm water.
- One person customized two anal catheters to a shower hose for better irrigation.
- Another uses a standard enema bag and tubing while in the shower.
- Cone-tip irrigation kits have also been tried.
- It's important to be cautious of the risk of perforation and to seek training from a healthcare professional before attempting these methods.

2. Medicines and Therapeutic Enemas:
- Short-Chain Fatty Acid (SCFA) enemas were suggested for Diversion Colitis, though they may not be covered by insurance.
- Cortisone enemas can help reduce rectal inflammation.
- Dicyclomine (Bentyl) was prescribed for cramps, but it may worsen pain for some.
- Laxatives like MiraLAX, Ex-Lax, and Linzess have been used for motility issues.

3. Alternative and Additional Measures:
- Digital extraction, suppositories, and suction tubing provided limited relief.
- Incontinence pads can help catch mucus runoff after irrigation.
- Daily psoas-muscle stretching was recommended to alleviate abdominal pain.

4. Surgical Options:
- Some surgeons have suggested proctectomy with anal closure or total colectomy if mucus build-up or pain is uncontrollable.
- Opinions on surgery vary, with some surgeons leaving the decision to the patient.

5. Stoma and Skin Care:
- Peristomal skin breakdown can occur if the stoma sits below skin level. Good barrier care and patience are important for healing.

6. General Experiences:
- Many people experience constant pressure and discomfort until the mucus plug is removed.
- Regular irrigation over time can change the mucus to a clear, runny, and odorless state, allowing for reduced frequency or stopping of irrigation.
- There is frustration that clinicians often do not provide an irrigation protocol or equipment, leading patients to create their own solutions.
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