This topic is all about creating a welcoming space for people with ostomies to introduce themselves, share their experiences, and find support. A long-time member, who has lived with an ileostomy for over 50 years, encourages both new and seasoned members to join in by sharing a bit about themselves. Here’s what she suggests everyone include:
- Where you live
- The type and date of your surgery
- The biggest challenge or "thorn" you are currently facing
- At least one blessing or positive aspect you are grateful for
She shares her own story as an example: living in New Jersey, having an ileostomy, dealing with extensive dental work after some health and job challenges, but also cherishing good days, dreaming of travel, and enjoying a birthday dinner with family. The aim is to make it easier for newcomers to ask for help and for others to offer support.
Some additional thoughts and advice from the community include:
1. Newcomers might feel overwhelmed, so having a friendly introduction thread can reassure them that support is available whenever they feel ready to reach out.
2. For those with a colostomy experiencing issues with leaking or unreliable pouches, switching to colostomy irrigation might help restore a sense of freedom and confidence. Members who have made this change suggest asking the community for detailed guidance and product recommendations.
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