This topic is about someone named Chris who is considering whether to undergo an ileostomy reversal. Chris had an ileostomy in 2016 and now has only 5 cm of their large intestine left. Their rectum and anus are still healthy and functional, so they are weighing the pros and cons of attempting a reversal. They are looking for opinions, medical experiences, and articles to help make this decision.
Here are some pieces of advice and insights shared by others:
1. The final decision should be made with your colorectal surgeon and gastroenterologist, as each case is unique.
2. Living with a permanent ileostomy can lead to a good quality of life. For example, one person has lived over 50 years with theirs and has no regrets.
3. The type of disease you have is important:
- If you have ulcerative colitis, which is limited to the colon and rectum, a reversal or J-pouch might be possible.
- If you have Crohn’s disease, it can return anywhere in the gastrointestinal tract. Even after a successful reversal, the disease might flare up again, possibly requiring another ileostomy.
4. With only 5 cm of colon, you might face issues with fluid absorption, leading to very frequent and urgent bowel movements, possibly more than 20 times a day.
5. J-pouch outcomes can vary greatly. Some people love it, while others do not. Potential complications include pouchitis, continuous loose output, and eventual pouch failure, which might require a permanent ileostomy.
6. During a reversal surgery, surgeons might have to stop and create a permanent ileostomy if complications arise. Be prepared for this possibility.
7. Emotional and age perspectives can influence the decision. Younger patients might want to try a reversal to avoid a lifelong appliance, while others might prefer the predictability of a stoma.
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