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Aug 15, 2017

Reversing ileostomy with 5cm large intestine?

This topic is about someone named Chris who is considering whether to undergo an ileostomy reversal. Chris had an ileostomy in 2016 and now has only 5 cm of their large intestine left. Their rectum and anus are still healthy and functional, so they are weighing the pros and cons of attempting a reversal. They are looking for opinions, medical experiences, and articles to help make this decision.

Here are some pieces of advice and insights shared by others:

1. The final decision should be made with your colorectal surgeon and gastroenterologist, as each case is unique.

2. Living with a permanent ileostomy can lead to a good quality of life. For example, one person has lived over 50 years with theirs and has no regrets.

3. The type of disease you have is important:
- If you have ulcerative colitis, which is limited to the colon and rectum, a reversal or J-pouch might be possible.
- If you have Crohn’s disease, it can return anywhere in the gastrointestinal tract. Even after a successful reversal, the disease might flare up again, possibly requiring another ileostomy.

4. With only 5 cm of colon, you might face issues with fluid absorption, leading to very frequent and urgent bowel movements, possibly more than 20 times a day.

5. J-pouch outcomes can vary greatly. Some people love it, while others do not. Potential complications include pouchitis, continuous loose output, and eventual pouch failure, which might require a permanent ileostomy.

6. During a reversal surgery, surgeons might have to stop and create a permanent ileostomy if complications arise. Be prepared for this possibility.

7. Emotional and age perspectives can influence the decision. Younger patients might want to try a reversal to avoid a lifelong appliance, while others might prefer the predictability of a stoma.
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