This topic is about the experiences and concerns of someone who has recently undergone a subtotal colectomy for ulcerative colitis. They are on a path to eventually have a J-pouch, but for now, their rectum is still in place and will be removed later. They are experiencing rectal sensations, passing mucus, and have noticed a small amount of blood. They are looking for reassurance and advice from others who have been through similar surgeries.
Here are some helpful insights and advice shared by others:
1. It is normal for a disconnected rectal stump to continue secreting mucus and occasionally bleed lightly. This can happen for months or even years after surgery.
2. The frequency and duration of mucus passage can vary. Some people still pass mucus 1½ years after surgery, and others have lived with an unused rectum for over a decade, continuing to evacuate mucus without issues.
3. To manage this, it is recommended to:
- Evacuate mucus whenever you feel the urge, as the rectum will need to empty from time to time.
- Consider using a lubricating suppository every other night to make the process easier.
4. While mild bleeding is expected, it is important to monitor the situation. If the bleeding becomes heavy or if symptoms worsen, it is advisable to contact your surgeon.
5. Some people have chosen to have their rectum fully removed due to persistent inflammation, instead of proceeding with a J-pouch. This is something to discuss with your surgical team as a possible option.
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