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Apr 24, 2018

Rectum Removal Surgery - Hospital Stay & Recovery Experiences?

This topic is about the experiences and advice related to rectum removal surgery, particularly for someone who already has a colostomy. The person is dealing with uncontrollable mucus drainage and is seeking information on what to expect during and after the surgery. Here are some insights and advice gathered from others who have gone through similar procedures:

1. Hospital Stay and Immediate Post-Op
- Hospital stays typically range from 3 to 14 days, with most people staying between 5 to 8 days. Longer stays can be due to complications like slow gut movement, bladder issues, or infections.
- Surgeries using robotic or laparoscopic methods often result in shorter hospital stays and less abdominal pain.
- Some patients may need to stay up to two weeks if infections or drains are involved, especially if they have had radiation treatment.

2. Pain, Sitting, and Positioning
- Pain in the rectal or perineal area is often more intense than abdominal pain. Sitting can be uncomfortable for 4 to 12 weeks, and hard chairs might remain difficult for a longer period.
- Cushions that can help include the Ehob "Waffle" cushion, Roho or other gel/air sacral cushions, and Costco gel pillows. Donut rings should be avoided as they can put pressure on the wound.
- Most people can sleep on their sides or back, though some may need to avoid lying directly on their back for a few weeks if extensive reconstruction was done.

3. Wound Care and Hygiene
- Changing gauze or packing daily helps keep the area dry. Some people use a hair-dryer on a low, warm setting after showers.
- Minor drainage can be managed with gauze, and pads or diapers are rarely needed. A menstrual pad or light incontinence pad is often sufficient.
- Good hygiene, gentle cleaning, and keeping the wound dry are important for healing. Listening to nurses' advice is crucial.
- Stitches usually dissolve or are removed within 3 to 6 weeks, and itching is normal as they dry.

4. Healing Time and Activity
- Functional recovery, which includes self-care and light activity, typically takes 4 to 6 weeks. Full energy and unrestricted sitting can take 3 to 12 months.
- Walking is highly recommended to regain strength and avoid complications, starting slowly and increasing daily.
- Over-activity early on can lead to wound issues and prolonged care. Lifting is usually limited to 10 pounds or less for 4 to 6 weeks.

5. Common Complications
- Infections or non-healing drain sites can occur but usually resolve with antibiotics or debridement.
- Some people experience long-term "phantom" urges to defecate.
- Hemorrhoids, itching, or residual pain with prolonged sitting may persist but generally improve over time.

6. Irrigation and Stoma Management
- Colostomy irrigation is recommended by several people, using 1 to 1½ liters of warm tap water. This routine takes 30 to 45 minutes and can provide 24 to 48 hours of predictable emptiness, reducing leaks and odor.
- Equipment needed includes a standard irrigation bag or pump and a stoma sleeve that empties into the toilet.
- Recommended appliances include the Hollister 2-piece system and ConvaTec 2-piece with Velcro closure.

7. Lifestyle and Long-Term Outlook
- Most people return to full work, travel, exercise, and a normal diet, though some initially limit high-fiber foods, nuts, and corn.
- Inflatable or portable cushions are useful for long flights or car trips.
- Maintaining a positive attitude and having a support network, such as family, online forums, or groups like "Unplug the Robot," can aid emotional recovery. Depression is common but manageable.
See full discusison
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