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May 03, 2018

Experiences with Colon Removal After Ileostomy

This topic is about someone who has an ileostomy and is considering having their colon removed due to suspected mucus build-up. They haven't passed any mucus since their surgery, even though they used to produce a lot. A recent attempt at a colonoscopy was stopped because it was too painful, and the doctor couldn't proceed. The person thinks that mucus might have hardened inside their unused colon. They are experiencing a swollen abdomen that gets worse after eating and doesn't crease when bending. An ultrasound is scheduled to investigate further, and if no other cause is found, the surgeon plans to remove the colon. The person is seeking advice from others who might have had similar experiences or have undergone colon removal while keeping their ileostomy. They are also managing their diet by blending raw vegetables and salads into smoothies.

Here are some insights and advice shared by others:

1. One individual who had their colon removed last year due to complications from Hirschsprung disease shared their experience:
- They no longer experience severe pain and frequent hospital visits since having the colectomy.
- Their quality of life has significantly improved compared to when they only had the ileostomy.
- They offer reassurance that colon removal can be a successful procedure, especially when the ileostomy is already working well.
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