Experiences with Colon Removal After Ileostomy

Hi there.

Firstly thankyou to everyone who replied to my 'danger foods' question. Sorry for the gap in replying things have been hectic. 

Since having my ileostomy done I have not passed one drop of mucus. Now I know some people don't but I used to produce loads of the stuff. I had a colonoscopy done but my consultant could only get a very short way in before the pain of him trying was just too much, it was horrendous. I think it may be mucus that has solidified. My abdomen is swollen and doesn't 'crease' when I bend over. It is also worse after a meal. I am due to have an ultrasound scan next week but unless something else is found I am having my colon removed. Has anyone else had this problem. Or has anyone had their colon removed with an ileostomy to deal with waste. My ileostomy is working wonderfully. I am very careful about what I eat and I do puree raw veg and salad to make smoothies.

Hey there,

I had my colon removal last year due to many complications from my Hirschsprung disease. Before this I was in horrendous pain and had episodes nearly every few months of hospital visits. However, since I had my colon removed I haven't had a problem since and my quality of life is much better than before my ileostomy. It's great to hear your ileostomy is working well though!

Kind regards,

James

Hey there,

I had my colon removal last year due to many complications from my Hirschsprung disease. Before this I was in horrendous pain and had episodes nearly every few months of hospital visits. However, since I had my colon removed I haven't had a problem since and my quality of life is much better than before my ileostomy. It's great to hear your ileostomy is working well though!

Kind regards,

James