This topic is about dealing with rectal stump bleeding, severe pelvic pain, and cramping due to a condition called diversion colitis. The person experiencing these symptoms is looking for ways to manage the pain and bleeding without undergoing high-risk surgery. Here are some insights and advice shared by others who have faced similar challenges:
1. Hospitalization and Antibiotics
- Some people have found relief by being admitted to the hospital for similar pain. They received intravenous antibiotics followed by oral medications like Flagyl (metronidazole), Cipro (ciprofloxacin), and sometimes Pentasa (mesalamine) or Azulfadine (sulfasalazine) to help control inflammation.
2. Do Not Ignore Persistent Bleeding
- Continuous bleeding from the rectal stump is a serious issue. It’s important to insist on a thorough evaluation and treatment rather than accepting it as normal.
3. Possible Definitive Solution
- Some individuals have chosen to have the rectal stump or J-pouch removed and the anus closed permanently. They found that this surgery ended years of pain, bleeding, and mucus, as diversion colitis can be difficult to manage long-term.
4. Interim Pain and Inflammation Control
- Using a topical steroid foam like Colifoam can help reduce swelling and pain when applied intrarectally or around the anus.
- Mild oral opiates might be necessary for managing breakthrough pain.
- In cases of severe pelvic inflammation, a Foley catheter might be needed if there is urinary retention and abdominal distension due to urethral constriction.
5. Quality of Life Considerations
- Persistent mucus discharge and pain can severely impact daily life and intimacy. While surgery can be daunting, it may restore quality of life when other treatments fail.
6. Peer Support
- Connecting with others who have similar experiences can be helpful. It’s important to advocate persistently with healthcare providers to get the necessary interventions.
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