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Aug 12, 2018

Need advice - Worried about ileostomy reversal, job security, and potential complications

This topic is about the concerns and considerations surrounding an ileostomy reversal, especially after surgery for rectal cancer. The person involved is worried about the potential challenges that might come with the reversal, such as frequent bowel movements, accidents, and the impact on their job and social life. They are seeking advice and experiences from others who have gone through similar situations. Here are some helpful insights and advice:

1. Take your time with the decision. An ileostomy reversal is not an emergency, so you can wait until you feel mentally prepared for the surgery.

2. Have a detailed discussion with your surgeon about the statistical chances of success. Ask for a personal risk estimate to understand your specific situation better.

3. Consider requesting objective tests, like Anal Rectal Manometry, to assess your anal sphincter function. This can help predict continence after the reversal.

4. Evaluate whether the original disease is fully resolved. If there are underlying issues like diverticulitis or diversion colitis, they might reappear after the reversal.

5. Keep in mind that online forums often highlight complications, as people with smooth recoveries tend not to post. Academic studies can offer broader insights, though they might not perfectly match your case.

6. Consider the quality-of-life trade-offs. Some people prefer a permanent stoma for predictability and to avoid potential incontinence, while others value being bag-free despite more frequent bathroom visits.

7. Job security and financial planning are important. Talk to your HR or occupational health staff about options for a gradual return to work and extended sick leave before making a decision.

8. If you experience severe rectal bleeding or new urgency, seek immediate medical attention. Do not wait to get assessed.
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