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Sep 27, 2018

Life After Ostomy Surgery: Sharing Personal Experiences

Life after ostomy surgery can be a significant adjustment, affecting both the body and mind. It’s a journey that many people, regardless of their age or the reason for their surgery, find challenging. One person shared their experience of struggling for two years before finding hope and inspiration in the stories of others, particularly from women who have gone through similar experiences. Here are some of the key points and advice they shared:

- Achieving complete relief through irrigation can be difficult and may not work for everyone. It's important to recognize and accept this if it applies to you.

- Concerns about dating, marriage, and intimacy are common. While some partners remain supportive, others may not. It's a personal journey for everyone involved.

- Anxiety about leaks and public accidents can be overwhelming. This person experienced severe anxiety that kept them homebound for over two years. Eventually, they found confidence by carrying supplies and gradually re-engaging with life.

- Accepting that life is imperfect but still valuable is crucial. The surgery may have changed the "cards" you were dealt, but you can choose how to play them.

Here are some helpful insights and advice:

1. Maintaining a positive attitude is essential. While you can't choose the circumstances, you can choose how to respond to them.

2. Finding the right products is important. Leaks can affect your confidence, so keep experimenting with different wafers, pouches, and accessories until you find what works best for you. Seeking suggestions and support from forums can be beneficial.

3. Accept the surgery as part of your body and take control of your situation. Moving past the "why me?" mindset can help speed up the adjustment process.

4. In the beginning, set one manageable task per day, like grocery shopping or yard work. As you become more comfortable with your care routine, gradually expand your activities. There's no need to limit your travel or social life.

5. Having strong support from family or a partner can ease the psychological burden, but personal acceptance is still necessary.

6. Sharing your honest experiences with new ostomates can reassure them that they are not alone and help guide them toward a more positive future.
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