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Jan 05, 2019

Help! Restricted diet - what can I eat?

Living with a descending colostomy can bring about some dietary challenges, especially when you're advised to avoid certain high-fiber foods to prevent blocking the stoma. If you're not a big fan of meat, you might feel your options are limited to things like oatmeal, grits, and Greek yogurt. Here are some helpful tips and insights to navigate this:

- **General Approach**
- Dietary restrictions are often temporary, especially in the first few weeks after surgery. Most people with a descending colostomy can return to a normal diet over time.
- Try a trial-and-error method: introduce one new food at a time in small portions, keep a food diary, and observe how it affects your output.
- Chew your food thoroughly and drink plenty of liquids with meals to help with digestion.

- **Early Post-Op/Healing Phase**
- Start with a low-residue, easily digested diet for the first 3-4 weeks. This can include eggs, mashed or baked potatoes, oatmeal, grits, yogurt, custards, and soft breads. Gradually expand your diet from there.
- Cook, steam, slow-cook, or purée fruits and vegetables before eating. Consider options like baked apples or pears (without skins), cooked squash, broccoli, carrots, asparagus tips, soups, stews, and crock-pot meals.
- Baby foods or blending meals can be a temporary solution if chewing is difficult.

- **Introducing Fiber & Problem Foods**
- Begin with small amounts of cooked vegetables. Many people with descending colostomies can tolerate steamed or even raw veggies, salads, and nuts once they have healed.
- Be cautious with high-risk items like nuts, seeds, corn, popcorn, mushroom skins, dried fruit, and beans, as they can swell or appear whole. Try them well-cooked, puréed, in nut-butter form, or mixed with softer foods.
- Cook beans longer or use refried/puréed versions to reduce gas and blockages.

- **Helpful Products & References**
- Metamucil (psyllium) can help gently move food through if you experience congestion.
- An online "Ostomates Food Reference Chart" can guide you on how different foods might affect your output.
- The Low-FODMAP Diet book can help identify gas-producing items like onion and garlic.

- **Ongoing Tips**
- Bananas can help thicken output, and plain yogurt provides beneficial bacteria.
- Keep re-testing foods that were previously troublesome, as healing can continue for months to years.
- If local expertise is limited, consider seeking advice from a colorectal surgeon or stoma nurse, and don't hesitate to travel to a larger center like UNC Chapel Hill for more specialized care.

- **For Those with Ileostomies (Shared Experience)**
- There's more variability, but many people eventually eat most foods, though some may permanently avoid raw veggies or whole nuts.
- Counting chews (e.g., 25 times per bite) and drinking extra fluids can help prevent blockages.

These tips can help you find a balance in your diet while living with a descending colostomy, allowing you to enjoy a variety of foods safely.
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