This topic is about a person who has been experiencing complications with their stoma after undergoing a colostomy. The individual has a condition known as CREST Syndrome, which they believe might be contributing to the recurring issues with their stoma. Here is a summary of their journey and some advice they are seeking:

- The person had their first colostomy surgery in June 2018. Initially, everything seemed fine with minimal pain and a healthy-looking stoma.
- By the second week, they started experiencing more pain and noticed white plaque patches on the stoma, which were signs of necrosis. Despite documenting these changes with photos, the clinic staff only prescribed more pain medication and did not address the underlying issue.
- By the fifth week, the situation worsened, leading to emergency surgery to remove the necrotic tissue. This resulted in a flat stoma, which caused continuous leakage despite trying various products.
- Since reversing the colostomy was not an option due to previous anal cancer, the person consulted another surgeon closer to home. This surgeon attempted to fix the issue by lengthening the colon to create a larger stoma.
- Two weeks after this second surgery, the person is experiencing similar symptoms again, with increasing pain and the same white plaque necrosis pattern.
- Medical professionals at Tampa General have not encountered a similar case in over a decade and have scheduled a follow-up in a month.
- The person suspects that their Limited Scleroderma/CREST Syndrome might be causing the repeated necrosis, but this suggestion has not been taken seriously by the surgeons. They are feeling frustrated and are looking for guidance, possibly from a rheumatologist or others who have faced similar experiences.

Advice for the person includes:

1. Seek an additional opinion as soon as possible, ideally from a surgeon or wound-ostomy specialist who is familiar with Limited Scleroderma/CREST Syndrome. It is important not to wait a month if the necrosis is progressing.