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Jun 05, 2019

Advice for short-gutted individuals - ostomy products, wraps, Stealth Belts, and daily challenges

Living with a short gut can be quite a journey, especially when managing high output, skin care, hydration, and the daily challenges that come with it. Here are some practical tips and insights that might help:

- For reliable ostomy appliances, it's helpful to explore different brands and product numbers that can handle frequent emptying. While you may have a preferred brand, keeping samples from other manufacturers like ConvaTec can be beneficial for finding improvements.

- Support garments such as wraps and Stealth Belts can offer additional comfort and security, especially when you're on the go.

- Handling everyday situations, like dating, can be tricky when you need to empty your pouch often. Having a discreet plan and being open with your partner can ease these moments.

- If you're dealing with recurrent peristomal skin irritation, daily barrier changes and using topical steroids like Betamethasone can help. Experimenting with different skin care routines, such as using diluted chlorinated water washes or stoma powder with barrier wipes, might also provide relief.

- Documenting your skin care routine with photos and logs can help you and your healthcare providers track progress and identify effective treatments.

- For hydration, developing homemade oral rehydration solutions (ORS) that taste good and meet osmolarity targets can be a game-changer. Sharing recipes with others can also be helpful.

- If you're experiencing high output, medications like Cholestyramine powder might help slow it down, although their effectiveness can vary over time. There are also new injections available, but they can be quite expensive.

- Understanding your body's output cycle can help you plan barrier changes and outings more effectively. Many people find that their output follows a predictable daily pattern.

- Dehydration is a common issue, so aggressive hydration strategies, including the use of ORS, are crucial to avoid hospitalizations.

Connecting with other "short-gutted" ostomates can provide valuable support and tips, making the journey a little easier.
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