Urostomy

Hi There, I have to go out of state for a Urostomy. Can someone give me a rough idea of recovery time after surgery, all going well with no complications. I will ask my surgeon but like I said he is out of state and would like a rough ide as I need to board my pets. Thanking you in advance.  I will have to fly back but can get a direct flight, about four hour flight. Meg

People with urostomies, please give me any info you can.  Anything at all, however trivial it might seem to you.  Thanks in advance.

Hello. I'm brand new here and I was wondering if I could get some tips on using Nystop powder around my stoma. I'm super new to this and the nurse wasn't much help. So ok... I have to use the Nystop powder and even though I use the skin prep (it's by 3M) my barrier won't stay stuck and I keep getting leaks. Like so often that I gotta change it a couple times a day. I tryed putting it on in layers like powder then spray on the 3M stuff more powder and more spray. If I don't use the powder at all I get no leaks at all and I can wear a barri...

I'm more than a little lost. I knew due to my cancer location (rectal) I'd have the inevitable colostomy. Unfortunately the tumor's location and its starting to invade the prostate resulted in it and the bladder also being removed. So now I have 2 bags....... I was struggling to deal with just one. The surgery was 8 hours and almost 5 weeks ago. I'm still having issues with pain. Lost over 20 lbs and had to extend my medical leave from work. I am thankful I am alive and the margins all came back good. However, while being alive that d...

Hi all!  I am 10 weeks post surgery. Had my left kidney, bladder and prostate removed. I have a stoma and am still experiencing with what works best for me. Recently, my whole stomach area became swollen (hard and hot); then a day later i noticed a lump -like a pimple- real close to my stapled scar. I admit a few days ago i push hard on a stubborn gate and knew as soon as i did it i shouldn't have. This morning my wife called Dr and his nurse said sounds like shingles to her. She said sometimes you have that before you get a rash...

Hi everyone. Can anyone reccomend an alternative to Hollister Urostomy bags? I currently use a one piece but am having a terrible time keeping them on longer than a few hours, lots of leaks while at work, while asleep at night etc. Quite frankly its driving me a little bit mad and as a consequence the skin around my stoma is getting a bit messed up. I do prefer a one piece and I'm in the UK if that matters. Thanks in advance.

Hi, I  am a recent double bagger. and I am having a hard time keeping my Urostomy bag from having blowouts, right at the crease in my skin t 9 o'clock. It seem like there is less time between blowouts now I am changing my Hollister bag at least once a day. I am using the paste but its not working, and I'm wondering if maybe its my close are to tight????? any suggestions will help Thank you Rose

Hi guys, Since I had my urostomy in March I've tried a few kinds of bags and most of time they work OK but once in a while they let go of my skin without any obvious cause or warning. The stoma nurses have been very helpful offering different kit and advice but I'm getting the impression they are getting a bit exasperated with me and my wilful ways.  Actually I don't have a deep seated desire to spring a leak in public places and am not trying to sabotage their efforts. I put the bags on apparently the same way each time and s...

I need to know how I can put my urostomy bag on by myself without the help of my husband. I am very short and have gained weight so we stand in bathroom with mirror and as I am applying gauze to the stoma so the urine (which leaks out as soon as I take patch off to replace) will stop flowing (we clean at this time also), my husband applies the cream that goes around the stoma and as I am still holding the gauze on he than applies the bag. We need 3-4 hands and I feel I should be doing this by myself because sometimes he is not here and I h...

I have had my urostomy since 1980 and over the years I have gained weight and now there is a very deep crease right across the middle of my stoma and it is leaking.  I am having to change it sometimes every one to two days and I am getting quite frustrated.  Has anyone tried the Convatec Disposable Insert and if so how do you size it.  My stoma is 3/4 inch.  And if you have tried it how is it working for you?  Any other suggestion as to what I should try would be greatly appreciated. &...

I am just where people change their urostomy pouches? Like in the bathroom, bedroom, lying down, standing up, or sitting? I have spina bifida so I have to change it while sitting. Sometimes that does not get the best adhesion because the stomach is not flat when changing it. Just curious how other people change their pouches to get the longest wear time?

My husband has a urostomy for almost two years.  His ex-wife left him after learning about his bladder cancer.  The problem for me is getting him to accept that I think he's a very attractive, kind, intelligent, and loving person who I am deeply in love with.  He still feels that the bag makes him ugly in appearance and is hesitant to work out in the gym due to his urostomy.  I don't even notice the bag and would gladly give him part of my bladder if that was possible.  What can I do to get...

Looking for anyone who has had a urostomy take down.  Just want info on what to expect.  The reason for my take down to continent urostomy is simpley to get rid of the bag.  I have had no other issues for the past 27 years. thanks for any information, uroman

Hi who has a urostomy for ic please email me

I just have been diagnosed with recurrant bowel cancer, my question is has anyone got a ileostomy and a urostomy. this might be a question that will have to answer to if i get the option after my pet scan results. I would like to make an informed choice on this matter. If i'm lucky enough to get this option. As it is ,i will be getting my whole pelvis cleared. Will it be worth it? Can anyone help me?   PLease  suzy x

So I am fairly well recovered from my recent colectomy but now learning that the radiation 15 years ago continues to lurk in other organs.  I've been dealing with kidney blockage, had stents inserted in both urethra at the same time as my December colectomy.  In February I had signs of urinary blockage (thankfully not painful like colon blockages!) and the urologist decided to change out the stents.  But he found them encrusted and decided to not replace them as the encrustation could be adding to the blockage...

any info on urostomies please how long is operation how long is recovery time will i lead a normal life and do things i cant now any info would be most wellcome

How do you manage to find smart clothes to wear following a urostomy? I can’t wear my bag over trousers and cover it with a floppy shirt or jumper as it fills up so quickly and its heavy.  I have to tuck it inside to support the weight of the liquid. I empty my bag at least once an hour as it gets so heavy. Apart from elastic waisted skirts or jogger pants (yuck!) I can’t find anything suitable to wear. Even wearing tights restrict the constant flow and I hate the bulge showing from  beneath my clothes when it fill...

I had my bladder and prostate removed in October due to bladder cancer and I’m currently undergoing chemotherapy. I want to get back to tennis and golf ASAP but need advise on the best forms of support. There is lots online for colostomy but nothing for Urostomy.......can you help?

hi anyone out there with a urostomy i am trying to get this drinking right how much should one drink a day. i have been drinking 4 litres a day and forever going to the loo so can some one tell me what is safe to drink david

wish my stomache wasnt so big!one consultant says i have pastorial hernia another one says i havnt! dont know where i stand! my tummy opposite my stoma looks bigger than the stoma half, i leak every day bit not from stoma, its either the (wee pipe) thats been left in after surgery or its coming from my vagina, but i cant tell which it is! anyone else have this problem? going 2 see consultant again next friday, hoping to sort it once and for all!

Hi, I am new here.  I had a urostomy 6 yrs. ago.  Recently, when changing my bag I am seeing dark skin around the stoma.  The stoma is a healthy color.  I also notice a tad more blood when cleaning the stoma.  This is very scary for me. Anyone have this or heard of this problem? Thanks and God bless. Pat

[quote/Roberto] There seems to be a lot of focus on colostomy. Well the management of URO-OSTOMY is much more difficult, because, the flow of urine is 24X7,& the erosion of the skin barrier is unpredictable. Mucus content in the urine, deposits onto  the walls of uro-pouch, constantly, causes the walls sticks to each other, resulting in a back flow and damage of the skin barrier.The leakage starts without an alert. What are the solutions to prevent any embarrassing situations. I have been an uro-ostmate for the past 18 years,...

All was going well until this afternoon.  She has gone about 4 hours now with very little urine coming out.  Not a normal day.  She is one month post-op.  Is this something to be concerned about?  We changed the bag today and everything looked good.  Thanks.

Hi, posting on behalf of a friend .... Does anyone else have problems with Hollister Moderma Flex Urostomy pouches having holes in them around the ring??? This lady has to use these as is allergic to all others, but has been battling with Hollister now for 4 years, but Hollister say that no-one else has ever had problems with them! Please let me know and I will pass on ..... Rach xxxx

In 2013 I had 2 massive surgeries to remove a cancer filled sacrum, rectum and carcenoid tumor. The tumor destroyed the nerve bundles that control my bladder among other things. I have a colostomy BUT not a urostomy. I am 67 and live in wet diapers 24/7. The urostomy was not done at the time because of the trauma already done to my body. I am so over wet dialpers and UTI's, and am considering an elective urostomy. Any thoughts? I really will appreciate any advice.

     Hi all,        This is my first post and a bit nervous.      I have a colostomy and urostomy cause of cancer. I'm sure there are others like me and was wondering how frustring it is dealing with them? I've noticed how products are made for one or the other, but not both. Like belts, underwear.. just to name a few. Are there any website made for both? Any help or advice or just to talk about them would be great.

Can anyone give me a good location for getting pouches at a reasonable rate. I tried osto group but no pouches like I use Hollister 8482   3/4" convex I was able to get a 3 months supply through insurance before I retired, Now I know why ins rates are so high. Edgepark charged my ins. $1200 for 45 pouches...I believe they offered me a whopping 10 or 15% discout being as I no longer have ins ( whooppee ) I have a few $$ saved but am trying to live within my income which is SS and thats it another year before I can get me...

Hello everyone,  does anyone have any info regarding urostomy hernias?  Do they get worse as we age?  Is surgery an option, etc.....Thank you for your time. Eileen, ( Love this site)  

Does anyone have small bowel obstructions--partial or complete occuring frequently?  what to do??  I've lower GI and many Ct scans all looks ok.

I'm looking to get a continent diversion.  I was told by the urologists at Shands in Florida, that I'm too much of a risk because my kidneys only function at 45%. Then who in THE COUNTRY would be the best sugeon to go to?  Where do I look to research this information?  What doctors are known to perform this surgury on a frequent basis? Does anyone know where I could get contact information & profiles on tese "Urinary Continent Diversion Specialists"?   Thanks for any information any ...

Hi all i have ileostomy since 1981 now i have been told i need a urostomy!.Has this happened to anyone else Dwyer

Have just reached 85, and had urostomy for 3 years.  After the first year I concluded that mucus was the source of most of my problems.  Whereas the bag adhesives are all impervious to urine mucus just goes straight through, and even parted the bag from the base plate on a couple of occasions.  I now use a two piece bag, and can therefor easily unclip the bag and wipe off mucus morning and night and sometimes more often.  The result is a vast improvement in the skin close up to the stoma.  ...