Urostomy

Hi There, I have to go out of state for a Urostomy. Can someone give me a rough idea of recovery time after surgery, all going well with no complications. I will ask my surgeon but like I said he is out of state and would like a rough ide as I n...

People with urostomies, please give me any info you can.  Anything at all, however trivial it might seem to you.  Thanks in advance.

hi! Just wondering if anyone can give some advice , my Urostomy leeks nearly every night , i was going along fine for a while only a leek every second or third night but the lasy few nights i wake up to a flooded bed , basically i think its bec...

Hi all!  I am 10 weeks post surgery. Had my left kidney, bladder and prostate removed. I have a stoma and am still experiencing with what works best for me. Recently, my whole stomach area became swollen (hard and hot); then a day later i n...

Hi everyone. Can anyone reccomend an alternative to Hollister Urostomy bags? I currently use a one piece but am having a terrible time keeping them on longer than a few hours, lots of leaks while at work, while asleep at night etc. Quite frankly...

Hi guys, Since I had my urostomy in March I've tried a few kinds of bags and most of time they work OK but once in a while they let go of my skin without any obvious cause or warning. The stoma nurses have been very helpful offering different...

I need to know how I can put my urostomy bag on by myself without the help of my husband. I am very short and have gained weight so we stand in bathroom with mirror and as I am applying gauze to the stoma so the urine (which leaks out as soon as...

Hi, I  am a recent double bagger. and I am having a hard time keeping my Urostomy bag from having blowouts, right at the crease in my skin t 9 o'clock. It seem like there is less time between blowouts now I am changing my Hollister bag...

I have had my urostomy since 1980 and over the years I have gained weight and now there is a very deep crease right across the middle of my stoma and it is leaking.  I am having to change it sometimes every one to two days and I am get...

My husband has a urostomy for almost two years.  His ex-wife left him after learning about his bladder cancer.  The problem for me is getting him to accept that I think he's a very attractive, kind, intelligent, and loving pe...

I am just where people change their urostomy pouches? Like in the bathroom, bedroom, lying down, standing up, or sitting? I have spina bifida so I have to change it while sitting. Sometimes that does not get the best adhesion because the stomac...

So I am fairly well recovered from my recent colectomy but now learning that the radiation 15 years ago continues to lurk in other organs.  I've been dealing with kidney blockage, had stents inserted in both urethra at the same time as...

Hi who has a urostomy for ic please email me

I just have been diagnosed with recurrant bowel cancer, my question is has anyone got a ileostomy and a urostomy. this might be a question that will have to answer to if i get the option after my pet scan results. I would like to make an informe...

Looking for anyone who has had a urostomy take down.  Just want info on what to expect.  The reason for my take down to continent urostomy is simpley to get rid of the bag.  I have had no other issues for the past 2...

This video was created to help explain an ileal conduit/urostomy.   If you would like information on the Anatomical Apron shown in this video please contact me.           &nb sp; &nb...

How do you manage to find smart clothes to wear following a urostomy? I can’t wear my bag over trousers and cover it with a floppy shirt or jumper as it fills up so quickly and its heavy.  I have to tuck it inside to support the weig...

any info on urostomies please how long is operation how long is recovery time will i lead a normal life and do things i cant now any info would be most wellcome

I was wondering if any UK Urostomists got the summer edition of the Urostomy magazine. I could not believe it when it dropped through my letter box. I had been at the Glasgow Dansac roadshow a few months ago in Glasgow. The roadshow is doing the...

wish my stomache wasnt so big!one consultant says i have pastorial hernia another one says i havnt! dont know where i stand! my tummy opposite my stoma looks bigger than the stoma half, i leak every day bit not from stoma, its either the (wee...

hi anyone out there with a urostomy i am trying to get this drinking right how much should one drink a day. i have been drinking 4 litres a day and forever going to the loo so can some one tell me what is safe to drink david

Hi, I am new here.  I had a urostomy 6 yrs. ago.  Recently, when changing my bag I am seeing dark skin around the stoma.  The stoma is a healthy color.  I also notice a tad more blood when cleaning the sto...

[quote/Roberto] There seems to be a lot of focus on colostomy. Well the management of URO-OSTOMY is much more difficult, because, the flow of urine is 24X7,& the erosion of the skin barrier is unpredictable. Mucus content in the urine, depos...

All was going well until this afternoon.  She has gone about 4 hours now with very little urine coming out.  Not a normal day.  She is one month post-op.  Is this something to be concerned about? &nbs...

Hi folks I was just wondering if there was anyone in the same position as me, being a full time wheelchair user. I had a spinal cord injury a number of years ago but had to have a urostomy in 2009. I was given this as a last resort as I had so...

Hi, posting on behalf of a friend .... Does anyone else have problems with Hollister Moderma Flex Urostomy pouches having holes in them around the ring??? This lady has to use these as is allergic to all others, but has been battling with Holl...

Can anyone give me a good location for getting pouches at a reasonable rate. I tried osto group but no pouches like I use Hollister 8482   3/4" convex I was able to get a 3 months supply through insurance before I retired, Now I...

Hello everyone,  does anyone have any info regarding urostomy hernias?  Do they get worse as we age?  Is surgery an option, etc.....Thank you for your time. Eileen, ( Love this site)  

In 2013 I had 2 massive surgeries to remove a cancer filled sacrum, rectum and carcenoid tumor. The tumor destroyed the nerve bundles that control my bladder among other things. I have a colostomy BUT not a urostomy. I am 67 and live in wet diap...

     Hi all,        This is my first post and a bit nervous.      I have a colostomy and urostomy cause of cancer. I'm sure there are others like me and was w...

Have just reached 85, and had urostomy for 3 years.  After the first year I concluded that mucus was the source of most of my problems.  Whereas the bag adhesives are all impervious to urine mucus just goes straight through, ...

I'm looking to get a continent diversion.  I was told by the urologists at Shands in Florida, that I'm too much of a risk because my kidneys only function at 45%. Then who in THE COUNTRY would be the best sugeon to go to?  W...

Hi all i have ileostomy since 1981 now i have been told i need a urostomy!.Has this happened to anyone else Dwyer

Does anyone have small bowel obstructions--partial or complete occuring frequently?  what to do??  I've lower GI and many Ct scans all looks ok.

I have a Urostomy following R/C 7 weeks ago. I am over weight and the soma was put right in the crease  and it is also recessed. Does anyone have the same problems to help me through this.

I had a urostomy approximately 2 1/2 weeks ago and have yet to stop leakage. I change my bag system 2-3 per day. I use a 2 piece system, as this allows me to line up over my stomach more accurately. One of my challenges is to get the barrier on ...

I am new to having a urostomy. Can people tell me what brand pouches they have found more reliable?

Hello all I'm new to this age but not new to my Urostomy I have had it for 37 yrs . I use convatec 2 piece system and don't have too much trouble . I usually have to change the wafer 1 or 2 imes a week if I'm lucky. Lately I ave been using some ...

Hi,  I have Peripheral Neuropathy for the past 3 years. I have to take oxycodone for the pain.Ever since I was on it, I had leaks in the bag. Anyone have problems with medicines causing leakage? Thanks! Pat

I have a illeal conduit urostomy . Was wondring if anyone can help me with leaking problems???? I have been having a lot of problems since I have been inFl for the winter. My wife thinks it si because I drink beer. I lay down putting the pouch o...

Hi I had my bladder removed in January and just recently maybe the last month or so I have been getting pain and I have felt a lump behind my stoma. I asked my stoma nurse and she said Yeh you could have one! That was it. I'm concerned only beca...

Any information on sports skydivers with urostomy would be appreciated.

Hi I need some advice. Today when I took off my pouch to change it I saw what looked like a yellow crust on the bottom half of my stoma.  Does anyone know what it might be?  How do I get rid of it?  Should I be concerned$  Sh...

I was born with an extrophy of the bladder in '64 and have had my urostomy since '71.  I'm looking for a specialist who could convert my urostomy into a continent diversion like Sweede's.  I'd ultimately like to get rid of ol...

need to connect with young ppl with urostomy /continent unirary diversions.scared of kidney disease.i have ic

As strange a this may sound, could anyone tell me where i can download an actual dvd of a urostomy surgery. I have searched everywhere I can thinkof  but to no avail. I wouldlike to watch what surgeons actually did when  I ha...

Hello everyone, I just wanted to know if anyone uses or has used the Marlen UltraLite Urostomy Pouch with Aquatack and deep convexity and, if so, how is it and has it worked out for you.  I need a pouching system with deep convexity ...

I had  a urostomy done in 1970 due to spins bifida neurogenic bladder and my bladder was left in what I do no know.  I think the bladder is now infected.  Has anyone had the same experience?  Please let me know.  Thanks.

Hi. My name is John van der Walt. I live in South Africa, am 69 years old, married and retired. I had a radical cystectomy in March 2015 and have been using a urostomy bag since then. I would like to contact people in South Africa via the intern...

Dear Admin I would like to know if the urostomy operation has been done wrong, can it be corrected or once its done there is nothing to do even if there are problems with it. Thank you, hope to hear from you soon.

Hence bag leaking or falling off completely..anyone had similar problem..not sure if its sweat under pouch ring or urine doing the dissolving but does seem a lot worse in hot weather...open to any advice

I would love to travel in India for a month or so. At the risk of offending any of you good folks who may live in India, I need to ask a few questions. I have a urostomy. Most of the books I've read about India, both nonfiction and fiction, d...

Does anyone have any suggestions on how to empty cymed urostomy pouches witout getting urine on your hands?

I was accidentally shipped urostomy supplies a few months ago. The supply company never sent anyone to pick them up, and they didn't give me any address to ship them to. So the supplies have been here long enough! If you have a urostomy and co...