Urostomy

Hi There, I have to go out of state for a Urostomy. Can someone give me a rough idea of recovery time after surgery, all going well with no complications. I will ask my surgeon but like I said he is out of state and would like a rough ide as I need to board my pets. Thanking you in advance.  I will have to fly back but can get a direct flight, about four hour flight. Meg

People with urostomies, please give me any info you can.  Anything at all, however trivial it might seem to you.  Thanks in advance.

hi! Just wondering if anyone can give some advice , my Urostomy leeks nearly every night , i was going along fine for a while only a leek every second or third night but the lasy few nights i wake up to a flooded bed , basically i think its because i turn on to my side when i am asleep and the wee cant drain out into over night bag,,,i try laying on my back,, but eventauly end on my side again ,,,its really getting me down as i want to go visit my son and friends and stay over night but i cant with this happening all the time,,,

Hi all!  I am 10 weeks post surgery. Had my left kidney, bladder and prostate removed. I have a stoma and am still experiencing with what works best for me. Recently, my whole stomach area became swollen (hard and hot); then a day later i noticed a lump -like a pimple- real close to my stapled scar. I admit a few days ago i push hard on a stubborn gate and knew as soon as i did it i shouldn't have. This morning my wife called Dr and his nurse said sounds like shingles to her. She said sometimes you have that before you get a rash...

Hi everyone. Can anyone reccomend an alternative to Hollister Urostomy bags? I currently use a one piece but am having a terrible time keeping them on longer than a few hours, lots of leaks while at work, while asleep at night etc. Quite frankly its driving me a little bit mad and as a consequence the skin around my stoma is getting a bit messed up. I do prefer a one piece and I'm in the UK if that matters. Thanks in advance.

Hi guys, Since I had my urostomy in March I've tried a few kinds of bags and most of time they work OK but once in a while they let go of my skin without any obvious cause or warning. The stoma nurses have been very helpful offering different kit and advice but I'm getting the impression they are getting a bit exasperated with me and my wilful ways.  Actually I don't have a deep seated desire to spring a leak in public places and am not trying to sabotage their efforts. I put the bags on apparently the same way each time and s...

I need to know how I can put my urostomy bag on by myself without the help of my husband. I am very short and have gained weight so we stand in bathroom with mirror and as I am applying gauze to the stoma so the urine (which leaks out as soon as I take patch off to replace) will stop flowing (we clean at this time also), my husband applies the cream that goes around the stoma and as I am still holding the gauze on he than applies the bag. We need 3-4 hands and I feel I should be doing this by myself because sometimes he is not here and I h...

Hi, I  am a recent double bagger. and I am having a hard time keeping my Urostomy bag from having blowouts, right at the crease in my skin t 9 o'clock. It seem like there is less time between blowouts now I am changing my Hollister bag at least once a day. I am using the paste but its not working, and I'm wondering if maybe its my close are to tight????? any suggestions will help Thank you Rose

I have had my urostomy since 1980 and over the years I have gained weight and now there is a very deep crease right across the middle of my stoma and it is leaking.  I am having to change it sometimes every one to two days and I am getting quite frustrated.  Has anyone tried the Convatec Disposable Insert and if so how do you size it.  My stoma is 3/4 inch.  And if you have tried it how is it working for you?  Any other suggestion as to what I should try would be greatly appreciated. &...

My husband has a urostomy for almost two years.  His ex-wife left him after learning about his bladder cancer.  The problem for me is getting him to accept that I think he's a very attractive, kind, intelligent, and loving person who I am deeply in love with.  He still feels that the bag makes him ugly in appearance and is hesitant to work out in the gym due to his urostomy.  I don't even notice the bag and would gladly give him part of my bladder if that was possible.  What can I do to get...

I am just where people change their urostomy pouches? Like in the bathroom, bedroom, lying down, standing up, or sitting? I have spina bifida so I have to change it while sitting. Sometimes that does not get the best adhesion because the stomach is not flat when changing it. Just curious how other people change their pouches to get the longest wear time?

So I am fairly well recovered from my recent colectomy but now learning that the radiation 15 years ago continues to lurk in other organs.  I've been dealing with kidney blockage, had stents inserted in both urethra at the same time as my December colectomy.  In February I had signs of urinary blockage (thankfully not painful like colon blockages!) and the urologist decided to change out the stents.  But he found them encrusted and decided to not replace them as the encrustation could be adding to the blockage...

Hi who has a urostomy for ic please email me

I just have been diagnosed with recurrant bowel cancer, my question is has anyone got a ileostomy and a urostomy. this might be a question that will have to answer to if i get the option after my pet scan results. I would like to make an informed choice on this matter. If i'm lucky enough to get this option. As it is ,i will be getting my whole pelvis cleared. Will it be worth it? Can anyone help me?   PLease  suzy x

Looking for anyone who has had a urostomy take down.  Just want info on what to expect.  The reason for my take down to continent urostomy is simpley to get rid of the bag.  I have had no other issues for the past 27 years. thanks for any information, uroman

This video was created to help explain an ileal conduit/urostomy.   If you would like information on the Anatomical Apron shown in this video please contact me.           &nb sp;   Link

How do you manage to find smart clothes to wear following a urostomy? I can’t wear my bag over trousers and cover it with a floppy shirt or jumper as it fills up so quickly and its heavy.  I have to tuck it inside to support the weight of the liquid. I empty my bag at least once an hour as it gets so heavy. Apart from elastic waisted skirts or jogger pants (yuck!) I can’t find anything suitable to wear. Even wearing tights restrict the constant flow and I hate the bulge showing from  beneath my clothes when it fill...

any info on urostomies please how long is operation how long is recovery time will i lead a normal life and do things i cant now any info would be most wellcome

I was wondering if any UK Urostomists got the summer edition of the Urostomy magazine. I could not believe it when it dropped through my letter box. I had been at the Glasgow Dansac roadshow a few months ago in Glasgow. The roadshow is doing the rounds of the UK and is well worth a visit. The main feature of the roadshow is a play entitled "Still me Waving" which takes a look at living with a stoma. Anyway  I was gobsmacked because I had my picture taken at the roadshow and the picture ended up on the front cover of th...

wish my stomache wasnt so big!one consultant says i have pastorial hernia another one says i havnt! dont know where i stand! my tummy opposite my stoma looks bigger than the stoma half, i leak every day bit not from stoma, its either the (wee pipe) thats been left in after surgery or its coming from my vagina, but i cant tell which it is! anyone else have this problem? going 2 see consultant again next friday, hoping to sort it once and for all!

hi anyone out there with a urostomy i am trying to get this drinking right how much should one drink a day. i have been drinking 4 litres a day and forever going to the loo so can some one tell me what is safe to drink david

Hi, I am new here.  I had a urostomy 6 yrs. ago.  Recently, when changing my bag I am seeing dark skin around the stoma.  The stoma is a healthy color.  I also notice a tad more blood when cleaning the stoma.  This is very scary for me. Anyone have this or heard of this problem? Thanks and God bless. Pat

[quote/Roberto] There seems to be a lot of focus on colostomy. Well the management of URO-OSTOMY is much more difficult, because, the flow of urine is 24X7,& the erosion of the skin barrier is unpredictable. Mucus content in the urine, deposits onto  the walls of uro-pouch, constantly, causes the walls sticks to each other, resulting in a back flow and damage of the skin barrier.The leakage starts without an alert. What are the solutions to prevent any embarrassing situations. I have been an uro-ostmate for the past 18 years,...

All was going well until this afternoon.  She has gone about 4 hours now with very little urine coming out.  Not a normal day.  She is one month post-op.  Is this something to be concerned about?  We changed the bag today and everything looked good.  Thanks.

Hi folks I was just wondering if there was anyone in the same position as me, being a full time wheelchair user. I had a spinal cord injury a number of years ago but had to have a urostomy in 2009. I was given this as a last resort as I had so many issues with my bladder previously. I am just looking to see how others get on if there is anyone else. Thanks in advance DJ1

Hi, posting on behalf of a friend .... Does anyone else have problems with Hollister Moderma Flex Urostomy pouches having holes in them around the ring??? This lady has to use these as is allergic to all others, but has been battling with Hollister now for 4 years, but Hollister say that no-one else has ever had problems with them! Please let me know and I will pass on ..... Rach xxxx

Can anyone give me a good location for getting pouches at a reasonable rate. I tried osto group but no pouches like I use Hollister 8482   3/4" convex I was able to get a 3 months supply through insurance before I retired, Now I know why ins rates are so high. Edgepark charged my ins. $1200 for 45 pouches...I believe they offered me a whopping 10 or 15% discout being as I no longer have ins ( whooppee ) I have a few $$ saved but am trying to live within my income which is SS and thats it another year before I can get me...

Hello everyone,  does anyone have any info regarding urostomy hernias?  Do they get worse as we age?  Is surgery an option, etc.....Thank you for your time. Eileen, ( Love this site)  

In 2013 I had 2 massive surgeries to remove a cancer filled sacrum, rectum and carcenoid tumor. The tumor destroyed the nerve bundles that control my bladder among other things. I have a colostomy BUT not a urostomy. I am 67 and live in wet diapers 24/7. The urostomy was not done at the time because of the trauma already done to my body. I am so over wet dialpers and UTI's, and am considering an elective urostomy. Any thoughts? I really will appreciate any advice.

     Hi all,        This is my first post and a bit nervous.      I have a colostomy and urostomy cause of cancer. I'm sure there are others like me and was wondering how frustring it is dealing with them? I've noticed how products are made for one or the other, but not both. Like belts, underwear.. just to name a few. Are there any website made for both? Any help or advice or just to talk about them would be great.

Have just reached 85, and had urostomy for 3 years.  After the first year I concluded that mucus was the source of most of my problems.  Whereas the bag adhesives are all impervious to urine mucus just goes straight through, and even parted the bag from the base plate on a couple of occasions.  I now use a two piece bag, and can therefor easily unclip the bag and wipe off mucus morning and night and sometimes more often.  The result is a vast improvement in the skin close up to the stoma.  ...

I'm looking to get a continent diversion.  I was told by the urologists at Shands in Florida, that I'm too much of a risk because my kidneys only function at 45%. Then who in THE COUNTRY would be the best sugeon to go to?  Where do I look to research this information?  What doctors are known to perform this surgury on a frequent basis? Does anyone know where I could get contact information & profiles on tese "Urinary Continent Diversion Specialists"?   Thanks for any information any ...

Hi all i have ileostomy since 1981 now i have been told i need a urostomy!.Has this happened to anyone else Dwyer

Does anyone have small bowel obstructions--partial or complete occuring frequently?  what to do??  I've lower GI and many Ct scans all looks ok.

I have a Urostomy following R/C 7 weeks ago. I am over weight and the soma was put right in the crease  and it is also recessed. Does anyone have the same problems to help me through this.

I had a urostomy approximately 2 1/2 weeks ago and have yet to stop leakage. I change my bag system 2-3 per day. I use a 2 piece system, as this allows me to line up over my stomach more accurately. One of my challenges is to get the barrier on before urine comes out ruining the seal. I was suggested to actually push a tampon into the stoma to temporarily stop the urine. Is this safe?  Thank you. 

I am new to having a urostomy. Can people tell me what brand pouches they have found more reliable?

Hello all I'm new to this age but not new to my Urostomy I have had it for 37 yrs . I use convatec 2 piece system and don't have too much trouble . I usually have to change the wafer 1 or 2 imes a week if I'm lucky. Lately I ave been using some tape to help hold it seems to be helping I've had numerous surgeries and several kidney ston surgeries but I feel I'm pretty lucky no major problems Amy questions let me know jody

Hi,  I have Peripheral Neuropathy for the past 3 years. I have to take oxycodone for the pain.Ever since I was on it, I had leaks in the bag. Anyone have problems with medicines causing leakage? Thanks! Pat

I have a illeal conduit urostomy . Was wondring if anyone can help me with leaking problems???? I have been having a lot of problems since I have been inFl for the winter. My wife thinks it si because I drink beer. I lay down putting the pouch on. Does anyone have suggestions that might me????                  

Hi I had my bladder removed in January and just recently maybe the last month or so I have been getting pain and I have felt a lump behind my stoma. I asked my stoma nurse and she said Yeh you could have one! That was it. I'm concerned only because just this last couple of days I'm getting horrendous pain behind my stoma to the point I have to sit down where it takes my breath away. It's like someone is stabbing me. Also it's so painful when I cough, sneeze or even stand up. I haven't got a noticeable lump protruding out my stomach but I c...

Any information on sports skydivers with urostomy would be appreciated.

Hi I need some advice. Today when I took off my pouch to change it I saw what looked like a yellow crust on the bottom half of my stoma.  Does anyone know what it might be?  How do I get rid of it?  Should I be concerned$  Should I contact an ostomy nurse?  Really really freaked out!  Please help!

I was born with an extrophy of the bladder in '64 and have had my urostomy since '71.  I'm looking for a specialist who could convert my urostomy into a continent diversion like Sweede's.  I'd ultimately like to get rid of old scar tissue and also get vaginal reconstruction due to my condition.  Where could surgeoens all do this?  Could it be covered on insurance in the USA?  Could I be a candidate if I have 3rd stage kidney disease and a history of kidney stones due to recurring UTI infect...

need to connect with young ppl with urostomy /continent unirary diversions.scared of kidney disease.i have ic

As strange a this may sound, could anyone tell me where i can download an actual dvd of a urostomy surgery. I have searched everywhere I can thinkof  but to no avail. I wouldlike to watch what surgeons actually did when  I hadmyurostomy . many thanks phil

Hello everyone, I just wanted to know if anyone uses or has used the Marlen UltraLite Urostomy Pouch with Aquatack and deep convexity and, if so, how is it and has it worked out for you.  I need a pouching system with deep convexity and I am contacting all of the ostomy supply companies I can find with urostomy pouches that have deep convexity.  Thanks for your help.  Happy Holidays to all!!!

I had  a urostomy done in 1970 due to spins bifida neurogenic bladder and my bladder was left in what I do no know.  I think the bladder is now infected.  Has anyone had the same experience?  Please let me know.  Thanks.

Hi. My name is John van der Walt. I live in South Africa, am 69 years old, married and retired. I had a radical cystectomy in March 2015 and have been using a urostomy bag since then. I would like to contact people in South Africa via the internet with the same condition so as to maybe discuss common problems/achievements.   

Dear Admin I would like to know if the urostomy operation has been done wrong, can it be corrected or once its done there is nothing to do even if there are problems with it. Thank you, hope to hear from you soon.

Hence bag leaking or falling off completely..anyone had similar problem..not sure if its sweat under pouch ring or urine doing the dissolving but does seem a lot worse in hot weather...open to any advice

I would love to travel in India for a month or so. At the risk of offending any of you good folks who may live in India, I need to ask a few questions. I have a urostomy. Most of the books I've read about India, both nonfiction and fiction, describe public hygiene in the major cities as significantly different than we Westerners are used to. (The books are all by South Asian authors, and include "Maximum City, Bombay Lost and Found" by Suketu Mehta, and several of Salman Rushdie's works.) I would want to mix with the people, ...

Does anyone have any suggestions on how to empty cymed urostomy pouches witout getting urine on your hands?

I was accidentally shipped urostomy supplies a few months ago. The supply company never sent anyone to pick them up, and they didn't give me any address to ship them to. So the supplies have been here long enough! If you have a urostomy and could use some supplies, send me an e-mail and I give you the specifics of what I have. I will ship them to the USA and Canada only.