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pnwgirl1963

Recovering from Colostomy: Seeking Hope & Support

Mar 27, 2016 - Jun 19, 2023
Hi - Eight days ago, I had 15 inches of my colon removed and a colostomy placed due to severe diverticulitis with abscesses. It appears I've had this for a long time and it went undiagnosed, with my first bout in August of 2015. I almost died, they tell me.
Now I have this bag, and I'm overwhelmed.
Aside from being exhausted from major surgery, every twinge makes me anxious.
Has there been any ...
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81 replies | 17845 views
Cat Went

When did you get your ostomy?

May 06, 2022 - Jan 14, 2023
When did everyone get their ostomy? I've had mine since November 2019

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66 replies | 2964 views
drfields24

Rectum Removal Surgery: Hospital Stay & Recovery Experiences?

Apr 24, 2018 - Nov 08, 2019
Well hello everyone.
Needs your prayers. Just saw my surgeon today and they decided to remove my rectum.... Has anyone had this done? How long was the hospital stay and recovery?

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65 replies | 9511 views
redtop

Terrified of Upcoming Surgery - Need Sympathy and Comfort

Jul 14, 2015 - Jul 09, 2022
Hi.. My name is Sandy.. I'm 58, was diagnosed with rectal cancer on Feb 4..... I did the chemo, that was the easy part.... Then the radiation... Whew... Nobody told me about all the PAIN.... And so now, I'm looking at surgery on Friday, July 17, to reconstruct and to add a colostomy bag... Which will be with me the rest of my life.... And I don't mind saying, I'M SCARED.... I worry about what ...
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57 replies | 13723 views
RaenotRay

Bowel Prep with Ostomy: Tips & Laughs for Surgery Recovery!

Apr 14, 2022 - Apr 20, 2022
Hello friends,
I'm sitting in the calm of a sleeping house all prepped and ready for surgery. It's currently 1am here in Washington state. We're a tad behind the rest of the world.
I'm not sure if a bowel prep is better with or without an ostomy. I had the grand pleasure of putting 2 liters of soapy (go figure ‍) water into my stoma. I have a loop ileostomy, so there's the output portion, an ...
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52 replies | 3047 views
Ruppy08

Seeking Advice: Elective Colectomy/Ileostomy Experiences

Jun 26, 2019 - May 29, 2023
Hi everyone! My name is Nicole. I am 30 years old. I was diagnosed with UC when I was 16. I have been struggling this entire time, switching medication and diets, trying to find something that will work. And unfortunately, nothing has helped. I am currently getting Entyvio infusions every 4 weeks, taking Lialda every morning, 9 fiber pills a day, and sometimes maxing out at 8 Imodiums a day. I ...
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50 replies | 6095 views
Bill

A loner with a stoma

Dec 02, 2013 - Dec 19, 2016
A LONER WITH A STOMA.

Laughter simply drained from me
after I gained my ostomy.
It turned out just as I had feared
as all my friends just disappeared.

I don’t know where or why they went
after all the time we spent.
No longer seen around with me
and that’s down to my ostomy.

I was bereft within myself
for feeling left upon the shelf.
And I was lonely ...
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49 replies | 21222 views
catttters

Seeking advice on sex life after ileostomy surgery

Feb 11, 2014 - Feb 22, 2017
Hello, I'm a new ileostomy patient. I'm a bit frustrated about the death of my sex life. I'm a very happily married man with a beautiful daughter. Since my operation, I have been told in very clear terms that there is going to be no sex for the duration of my bag. Luckily, it's only 6 months until I have my reversal, but when you add the 2 months prior, it seems like a life sentence. I underst ...
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49 replies | 38605 views
past member

Can we eat salad? Need ideas!

Dec 28, 2010 - Aug 18, 2018
My stoma nurse said we can't eat anything raw, nuts, seeds, lettuce, tomatoes, or fruit, only bananas...
I've just read on a post that someone ate a salad sandwich. I would love to eat salad.
ANY IDEAS.

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48 replies | 57726 views
Rider1000rr

Physical Activities After Ostomy Surgery: Roller Coasters & Weightlifting?

Apr 26, 2017 - Nov 03, 2018
Can you ride roller coasters and lift weights after ostomy surgery?

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47 replies | 11445 views
Beth22

Experiences with Barbie butt revision?

Jul 27, 2022 - Dec 09, 2022
I went to the doctor yesterday. My stoma is getting revised. Praise God. The doctor also brought up the option of getting a Barbie butt due to my pelvic floor dysplasia. So, question for those that have a Barbie butt, how has it been with getting it done?

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47 replies | 3037 views
jpeters

Regretting Ostomy: Seeking Support and Advice

May 05, 2015 - Jan 25, 2018
I inherited a neuro disorder at 20 and spent the next 5 years having 15 BMs/day, constantly smelling like crap. As a result, I had no personal life and spent most of my time working from home. Bowels aside, I was very fit, healthy, comfortable, and extremely productive in a skilled high-tech job.
In 2013, I got a colostomy/ectomy. Since then, eating causes crippling bloating that leaves me wri ...
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44 replies | 17691 views
past member

Intimacy Issues After Ostomy Surgery - Am I Alone?

Mar 14, 2009 - May 20, 2011
Okay, I'm going to put myself out there with this one. I really miss sex. I know I'm married, but sex with my wife and I has gone the way of the dinosaur. It very rarely happens, I mean I can count on one hand how many times in a year..... I can't help but think it is the ostomy. Every time I try to talk about it, I get the "nothing's wrong" answer, yet nothing changes. I admit that we never h ...
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44 replies | 28507 views
Mertle Dove

Seeking Advice: Partner's Ostomy affecting Intimacy

Jun 09, 2018 - Jan 25, 2022
I'm new to the forum and I'll start by saying that I don't have an ostomy myself, but my partner recently had an operation for rectal cancer (May 2018) and now has a (hopefully) temporary ileostomy.
His histology results came back good, so no chemo is required, and he's hoping to have the reversal sometime in the next few months depending on the results of the contrast x-ray.
He's recovering w ...
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42 replies | 12966 views
kbd

Seeking Advice on Transitioning from Colostomy to Ileostomy: Need Tips and Insights

Apr 05, 2017 - Aug 17, 2018
Looking for feedback from those who have ileostomies and especially anyone who had a colostomy that was changed to an ileostomy.
A little over 6 years ago, I got a permanent colostomy. But now my gastro doctor said because of a bad stricture and polyps in my bowel, he is recommending to my colon surgeon that it be made into an ileostomy with most of my bowel removed--right now I have about 40% ...
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42 replies | 12025 views
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